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Jim Olejar als patient

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@jimolejar

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  • Profile picture of Jim Olejar als patient

    Jim Olejar als patient replied to the topic Update us on the research and trials you are in!! in the forum Research Topics 9 months, 1 week ago

    I live near Pittsburgh and go to the Allegheny General Hospital
    Als clinic. I have tried to get into trials for 2 years. In the beginning I was told I wasn’t sick enough then I found the Healy trials and signed up for them and COVID hit and all the trials were put on hold. No I am over 3 years since onset of symptoms and not eligible for them a…[Read more]

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    Jim Olejar als patient replied to the topic Alternative Medicine and ALS in the forum Living With ALS 9 months, 1 week ago

    I am Jim Olejar an als patient diagnosed 12/18 with symptoms starting around 3/18. My problems began with gamer toes and bilateral foot drop. I managed to continue working as an electrician 8/19. Since that date I progressed from ago then added a cane then a walker and now a wheelchair. I still try to enjoy life and my wife and I make a point to…[Read more]

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    Jim Olejar als patient became a registered member 9 months, 3 weeks ago

    • Profile picture of Amanda
      Amanda replied 9 months, 3 weeks ago

      Hello Jim, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 9 months, 3 weeks ago

      Hello Jim,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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