john-hall
Base
Name | JOHN HALL |
Nickname | john-hall |
Year of Birth | 1954 |
Gender | Male |
Location | Houston |
Relationship | Patient |
Short Bio | After 2 unnecessary surgeries, diagnosed in April 2017 with PLS (Primary Lateral Sclerosis) also called UMN dominant ALS. After 5 days of tests at Mayo Clinic/Rochester in March 2021, diagnosed with ALS – prognosis bleak (3 years to bedridden; 5 years life remaining). After 36 straight hours of tests at Houston Methodist Neurological Institute in April 2021, diagnosed with PLS, non-fatal version of ALS. I’ve had 5 IV treatments with MSCs at SCI/Panama since Aug 2019. My weight loss and muscle wasting stopped and reversed. My overall health is excellent. I still have left side spasticity, poor balance (must use a walker), excess saliva and slurred speech. Based on the successful clinical trials of Corestem NeuroNata-R, I’m beginning IT (intrathecal) MSC treatment at SCI for my remaining symptoms – but no guarantees. |
How did you hear about us? | ALS News Today Newsletter |
How long have you or the person that you are caring for had ALS? | 5 years |
Privacy Policy and Terms of Use | I agree |