@josephosowski
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Joseph Osowski replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months ago
Suzanne, My doctor at Columbia initially prescribed the compound of Sodium phenylbutyrate and Tudca (both in capsule form) while waiting on FDA approval of Relyvrio. No side effects to report; no taste issues with capsule form. Total cost was around $900 per month, which is way cheaper than Relyvrio direct. I received it from a specialty ph…[Read more]
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Joseph Osowski posted a new activity comment 4 months ago
Hello Amanda,
Thank you for letting me join the forum.
Joseph Osowski -
Joseph Osowski posted a new activity comment 4 months ago
Hello Dagmar,
Thank you for letting me join the forum.
Joseph Osowski -
Joseph Osowski's profile was updated 4 months ago
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Joseph Osowski replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months ago
I am in my second starter week of Relyvrio at (1) packet per day. Next week I will go to (2) packets per day. No side effects to report; only has an initial bad taste. I offset the taste with a little mouthwash just before and immediately after.
My doctor at Columbia initially prescribed the compound of Sodium phenylbutyrate and Tudca (in c…[Read more]
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Joseph Osowski became a registered member 4 months ago
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Joseph,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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Hello Amanda,
Thank you for letting me join the forum.
Joseph Osowski
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Hello Joseph,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
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Hello Dagmar,
Thank you for letting me join the forum.
Joseph Osowski-
Welcome again 🙂 Let us know if we can be of help.
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Welcome again 🙂 Let us know if we can be of help.