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Name
Julie
Nickname
julie
Year of Birth
1964
Gender
Female
Location
Ontario Ny
Relationship
Patient
Short Bio
I started out in 2017 my left foot felt like I was walking on glass when i stood up after standing for hours at farmers market (I was a farmer) when i got home my foot dropped and I fell backwards down the stairs. I had a 4 tier spinal fusion thought this was what caused it but noooo then the dreaded words you have ALS c9orf72 gene mutation.
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How long have you or the person that you are caring for had ALS?
Almost 2 years
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