Base

Name

Julie

Nickname

julie

Year of Birth

1964

Gender

Female

Location

Ontario Ny

Relationship

Patient

Short Bio

I started out in 2017 my left foot felt like I was walking on glass when i stood up after standing for hours at farmers market (I was a farmer) when i got home my foot dropped  and I fell backwards down the stairs. I had a 4 tier spinal fusion thought this was what caused it but noooo  then the dreaded words you have ALS  c9orf72 gene mutation.

How did you hear about us?

Friend

How long have you or the person that you are caring for had ALS?

Almost 2 years

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