@kathleen
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Kathleen B replied to the topic Is this more progression? in the forum Diagnosis Information and General Questions 1 month, 3 weeks ago
Lisa,
Thoughts & prayers for you, your daughter & grandchildren is what I can offer best…and I truly will do so.
I know the angst you describe regarding the body changes…and lifestyle changes…and the Neuro dr.’s ‘hedging’ (the most frustrating, unexpected piece)…tho’ I also cannot imagine how it would be to ‘go to work’ every day and…[Read more]
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Kathleen B replied to the topic Virtual Meeting in the forum ALS Awareness and Advocacy 1 month, 3 weeks ago
I’m a recent Forums join–interested in the Virtual meeting idea too–best time for me is in the 10am-3pm time range– Eastern (Daylight savings) Time Zone of the United States.
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Kathleen B replied to the topic AFOs: Are they worth it? in the forum Mobility Aides, Assistive Technology and Medical Equipment 2 months ago
Hi all,
I’m new to Forums, but got interested in ‘joining in’ because of some of the discussions. I’m really new to ALS (2 months ago diagnosis)…but I do already have both AFO’s and a rollator walker. I was not a fan of having or using either right away…but I was more frustrated with moving slow to be safe and avoid falls (due to foot dr…[Read more]
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Kathleen B posted a new activity comment 2 months ago
Thank you Dagmar,
I really enjoy your writing style and input of practical things! Even made a print copy of one item ( the ‘new’ new normal)…as it helped me figure out a way to share ALS diagnosis with a handful of close friends. I look forward to sharing and learning. Such as: I read there is a way to ‘private message’…how is that done?…[Read more] -
Kathleen B posted a new activity comment 2 months ago
Thank you Amanda,
I’d like to go by the name ‘Katie’ for the forum–how do I do that without messing up my ‘user name’ (which said must be real name). I have been reading the ALS Digest & forums a month now…just took some tech help to figure out how to register, (LOL! have not done any social networks, just teaching technology things with IT…[Read more] -
Kathleen B became a registered member 2 months, 2 weeks ago
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Hello Kathleen,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]
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Thank you Dagmar,
I really enjoy your writing style and input of practical things! Even made a print copy of one item ( the ‘new’ new normal)…as it helped me figure out a way to share ALS diagnosis with a handful of close friends. I look forward to sharing and learning. Such as: I read there is a way to ‘private message’…how is that done?…[Read more]-
On your profile page you’ll find the option to send a “message” (public) or send a “private message” – – choose that one if you don’t want it seen by all members. Dagmar
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Hello Kathleen, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
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Thank you Amanda,
I’d like to go by the name ‘Katie’ for the forum–how do I do that without messing up my ‘user name’ (which said must be real name). I have been reading the ALS Digest & forums a month now…just took some tech help to figure out how to register, (LOL! have not done any social networks, just teaching technology things with IT…[Read more]
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On your profile page you’ll find the option to send a “message” (public) or send a “private message” – – choose that one if you don’t want it seen by all members. Dagmar