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Roxanne Kusske and
Kevin are now friends 1 year, 1 month ago
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Kevin replied to the topic ALS Awareness Month 2021 Member Spotlight: John Sprague in the forum ALS Awareness Month 1 year, 1 month ago
I am with you, brother. I was diagnosed with ALS in May 2012. It was very slow progressing at first. Mainly in my hands, arms, and shoulders. Ironically, my shoulders were always my best asset, and I was proud of them. Within the last five years or so, it has progressed to my legs. I can still walk, but with much difficulty, and not very far. I…[Read more]
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Kevin changed their profile picture 1 year, 3 months ago
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Kevin changed their profile picture 1 year, 3 months ago
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Amanda and
Kevin are now friends 1 year, 3 months ago
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Kevin replied to the topic Leg jerks in the forum Living With ALS 1 year, 7 months ago
My doctor, a renowned neurologist at the Cleveland Clinic, prescribed me Mexiletine for my leg cramps. It has really helped me.
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Kevin became a registered member 1 year, 7 months ago
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Hello Kevin,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]
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Hello Kevin, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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