Douglas M Clough replied to the topic Here I Go Again in the forum Research Topics 7 months ago
I go to Barrow and have never experienced that level of clinic. We have clinics at Mayo, the VA and 2 other hospitals and none do them like that. That would be more exhausting than it is now. I was in a clinical trial and expanded access for 5 years.
Clinic visits are to evaluate progression and aid the patient and family in ways that can help…[Read more]
Douglas M Clough replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A Forum for ALS Caregivers 1 year ago
I hate the saliva issue. I take atropine by itself now because the hyoscyamine affects the whole body. I have a neurogenic bladder and using hyo created a constant urge feeling.
I graduated to the big bottles of atropine. I get dry mouth all the time and it tastes like desert after sleeping with the bipap. The only place I get Botox is in my…[Read more]
Douglas M Clough became a registered member 3 years, 6 months ago
Hello Douglas (and fellow Arizonian!),
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic.
If you have any…[Read more]
Hello Douglas, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]