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Douglas M Clough

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@krnndug

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    Douglas M Clough replied to the topic Here I Go Again in the forum Research Topics 3 months ago

    I go to Barrow and have never experienced that level of clinic. We have clinics at Mayo, the VA and 2 other hospitals and none do them like that. That would be more exhausting than it is now. I was in a clinical trial and expanded access for 5 years.

    Clinic visits are to evaluate progression and aid the patient and family in ways that can help…[Read more]

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    Douglas M Clough replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 8 months, 2 weeks ago

    I hate the saliva issue. I take atropine by itself now because the hyoscyamine affects the whole body. I have a neurogenic bladder and using hyo created a constant urge feeling.

    I graduated to the big bottles of atropine. I get dry mouth all the time and it tastes like desert after sleeping with the bipap. The only place I get Botox is in my…[Read more]

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    Douglas M Clough became a registered member 3 years, 1 month ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 3 years, 1 month ago

      Hello Douglas (and fellow Arizonian!),
      Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010. If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic.

      If you have any…[Read more]

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      Amanda replied 3 years, 1 month ago

      Hello Douglas, and welcome to the ALS forum. I’m Amanda, one of the co-moderators. Thank you for joining the ALS forum. Please take a look at the topics and ongoing discussions. You are invited to join in, comment, ask questions to our members and/or post discussion topics. If there is a topic you would like us to post, just reach out and let us k…[Read more]

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