Forum Replies Created

  • Linda Lennon

    Member
    February 16, 2022 at 1:46 pm in reply to: Modifying your Home

    I have an additional question, I have limb onset and getting more difficult especially when traveling on the road or using public restrooms with out family rest room. I have only my husband to help so how do you handle using the commode when you are no longer able to lift yourself up.

  • Linda Lennon

    Member
    December 17, 2021 at 1:44 pm in reply to: Update us on the research and trials you are in!!

    I started the cytokines trial trading to arizona, too early to say if there is positive effects minimal side effects. This drug is to help with muscle strength. We just have to keep on trying.

  • Linda Lennon

    Member
    September 15, 2021 at 11:08 am in reply to: Stem Cell therapy for ALS

    Mayo clinic is offering one but you need to travel to the Minnesota location

  • Linda Lennon

    Member
    June 29, 2021 at 2:52 pm in reply to: SUPPLEMENTS TO SLOW ALS PROGRESSION

    In addition to some of the supplements mentioned by others I’m using red light therapy my research indicated it helps mitochondria the cells power house, not sure if its helping.