Forum Replies Created

  • Lanny Kohnhorst

    Member
    May 16, 2023 at 2:15 pm in reply to: Your tips, advice, and words of wisdom for others in the ALS community

    If it is your spouse that is suffering through ALS spend as much time as possible with them, the end is nearer than you think

  • Lanny Kohnhorst

    Member
    October 5, 2022 at 10:35 am in reply to: Caregivers, what are YOUR warning signs that you need to take a break?

    Even if I do need a break I would feel like I was lost without my wife with me (ALS at age 76)  I would also feel guilty not being there for her. I have no answers only an understanding boss and a few nearby folks that stay with her a few hours on the 4 days I must work, it is tiring and sleeping an hour up an hour all night certainly makes it worse. I have gone from a 40 waist to a 36 since my darling was diagnosed last February, a life changer is an understatement

     

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