Laurie Tomasello

Sorry,it’s “Quanta” magazine

Hi Shawn ,not sure if this is what you are after, however I stumbled upon a magazine in the Flipboard app, titled biology.

There are many articles covering much more than ALS, however I found some interesting once’s referencing ALS. Most of the articles seem to come from “ Quantum” magazine.

These are not articles updating trials, but does provi…[Read more]

Thanks Dagmar, I won’t be trying it without consulting with my Doctor as I am on the Rescue ALS ( gold) trial which is apparently going well.  Just interested as it was mentioned to me by a PAL.

Hi, I am in Sydney, Australia and starting the screening process on 5 May with the trial commencing a month later.  The screening seems to be pretty extensive, but also baselines you for comparison throughout the 40 weeks.

The articles says that it is being conducted at various sites around the world with US included of course.

Thanks Lisa, I think I know what the results will show, just need to get on with it and hope the progression is slow.

Hi, I’m really confused now.  A well recognised Neurologist said I have ALS, after examination, an MRI and an EMG.  He handed me over to another world recognised Neurologist who examined me, re-did the EMG and did a brain scan.

The outcomes of the second visit were that my results were “abnormal” in both the EMG and the brain scan for an ALS dia…[Read more]

Hi, Only 6 days since being diagnosed by a highly regarded Neurology Professor and have had an MRI & a nerve conduction study.  Symptoms are a weakness and muscle loss in my right hand, shortness of breath on exertion and the doc says my right leg lacks strength.  All else is fine.

Seeing a highly regarded Neurology  specialist and vo…[Read more]

This is the most difficult part for me. I want/need tow keep working which means I am away from home, however she needs me right now. I worry much more about her than my prognosis.