My husband also uses that spray, he thinks it’s helpful, says he can’t eat without using it first. It’s more on one side and drives him crazy. His MRI of brain last summer actually lit up an area of inflammation in the right sinus area (the worst side) and he feels it’s definitely ALS related.

Breathing is most difficult all the time but trying to shower and shave is close. Thankfully it doesn’t need done as often as breathing but a shower is something I dread.