Base

Name

Lisa Johns

Nickname

lisa-johns

Year of Birth

08/03/1967

Gender

Female

Location

Xenia,IL.

Relationship

Patient

Short Bio

My name is Lisa and I am 55  I am native of southern Illinois and live here still.  I am newly diagnosed and still in denial  o started showing symptoms of arm weakness in June of 2022

my health has plummeted from there I can still talk, swallow, eat solids, and (for the most part) walk but have already been recommended fr a motorized wheelchair in a little over 6 months   I also sleep with a bipap at night to expel the CO2
I have several spinal column issues with osteoporosis and osteoarthritis with a history of cervical spine disc replacement

I am having a hard time wrapping my head around the diagnosis

my oldest son is getting married in June  I am not yet a grandmother  This is so unbelievable to me

How did you hear about us?

ALS Website

How long have you or the person that you are caring for had ALS?

About 9 months since onset

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