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@lorrainelarkin
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Lorraine Larkin replied to the topic Your tips, advice, and words of wisdom for others in the ALS community in the forum Living With ALS 1 month ago
I would strongly advise finding a palliative care doctor in addition to going to an ALS clinic. We found one for my husband through a recommendation fron our ALS clinic. She has been fantastic and she is local, where the clinic is an hour away. She has made a big difference. Don’t wait to find one.
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Lorraine Larkin replied to the topic Removing phlegm-mucus from throat in the forum A Forum for ALS Caregivers 2 months, 3 weeks ago
- Mucinex helps my husband, you can put it through feeding tube, and cough assist.
Good luck!
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Lorraine Larkin became a registered member 3 months, 2 weeks ago
Hello Lorraine,
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]
Hello Lorraine,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]