[Lucyb1992]

Hi

I hope people don’t mind me commenting on this page however I am really looking for some advice/comments/reassurance.

My maternal grandmother had ALS when she was 68. My own mother does not have ALS.

I have symptoms such as;

Weakness in my right leg and foot (strength tests show I don’t have weakness though) and my big toe on my right foot feels numb and tingles.

Weakness in my right wrist/hand (but can still use it)

Twitching in my right leg, foot, left shoulder, left side back, and left arm. Fine little flickers under the skin and sometimes visible twitches.

Tingling in my feet and my legs, tingling in my left shoulder.

Feels as though my tongue isn’t working properly in my mouth, feels tingling, numb and feels as though I can’t speak properly although family members have not said anything. My voice seems quieter and my throat feels tight – I can still eat and drink.

my balance feels as though I am really unsteady and just generally really off balance.

my legs feel lifeless, heavy and shaky when walking.

Racing heart, palpitations.

my thoughts don’t seem clear and nothing feels real to me.

my whole body feels horrible and fatigued and like I have no life in it. i have no motivation for anything or strength for anything. I’m tired and fatigued 24-7.

some weight loss and my legs appear to be thinner but the neuro team say my legs are fine.

I can still raise on to my tip toes, heel walk, jog on the spot, I can eat and drink.

i had an EMG carried out in my right leg, left arm and hand, my thoracic back area and under chin (I assume my bulbar area). The neurologist wrote to me and said it showed no evidence of ALS or any other problem.
I also had an EMG in February 2020 in my left leg only which was also normal.

i had a brain scan in December which shows something called chiari malformation and loss of cervical lordosis in my spine.

I saw my general practitioner 5 weeks ago who measured my strength 6 out 5 so higher than normal and I saw a neurosurgeon 2 days ago who tested my strength and didn’t raise any concerns (he said my legs and shoulder looked and appeared normal).

can anyone tell me if this sounds like ALS? Any comments are much appreciated. Thank you.