lxps66
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Hi all,
I’m new to this forum. My grandfather died of ALS in his mid 60’s. All I remember is him dragging is foot when he walked. Now, my 85 yr old father seems to fit the bill for respiratory onset ALS. We’re bringing him to an ALS clinic next week and will also have genetic testing done. For the past 3 months, since I realized what his dx will probably be, I’ve been twitching. Mostly my left calf, but also in other spots. My toes cramp occasionally, but they’ve been doing that for years. I’m 55 and already have severe health anxiety and depression …this has put me over the edge. I struggle with whether or not to get tested..genetically and clinically. Trying to live in the moment but not doing it very well. Thank you for any input or advice you might share. ?
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Mark…I tend to agree. I have a lot of thinking to do. I’m already on meds for the anxiety/depression. It’s comforting to know that I have this forum for support. Thank you?
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<p style=”text-align: left;”>Thank you Meredith. If they find an als gene with my dad, I’m vacillating whether or not to get tested myself. I know new therapies are on the horizon but I have such anxiety and depression…I don’t know how I’d handle knowing. Yet, I’m miserable now anyway waiting for all the symptoms to start. I began having constant twitches when we realized my dad probably had it and that meant I could too. My husband is very supportive and is trying to keep me above water, but all I can think about is that I may have passed this to my kids. Ughhhh</p>