Base

Name

Susan

Nickname

malonekelley

Year of Birth

06/17/1958

Gender

Female

Location

California

Relationship

Patient

Short Bio

I was finally diagnosed in December 2021 after having right drop foot for a year, they thought it might be MS, but a second more detailed EMG revealed ALS. Naturally I was devastated t this news, I still am! It is only May 2022 and I am now in a wheelchair with no ability to move my legs or feet. I am going on my third sequence of Radicava infusion therapy, handling medication very well, no side effects, I pray that it slows my progression by up to 33% as it’s supposed to, I don’t feel any different since beginning therapy of Radicava, but I have not progressed either so that gives me hope!

How did you hear about us?

Physician

How long have you or the person that you are caring for had ALS?

1 .5 years

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