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Mam Sadek

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@mamsadek

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    Mam Sadek replied to the topic Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 5 months ago

    I took it for one month but stopped due to strong weakness all over my body .
    Couldn’t swallow it without gagging and throwing up.

     

     

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    Mam Sadek changed their profile picture 5 months, 3 weeks ago

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    Mam Sadek's profile was updated 5 months, 3 weeks ago

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    Mam Sadek posted a new activity comment 7 months, 3 weeks ago

    Dagmar & Amanda
    Thank you for your warm welcome

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    Mam Sadek replied to the topic What's the latest news on AMX0035? in the forum Research Topics 8 months ago

    I am newly diagnosed with ALS and my Central FL ALS Clinic put me on AMX0035 compound 5 capsules twice per day .
    after one month, lost my right arm by muscles atrophy. Weakness now is all over my body.
    I don’t believe Amx hasn’t revealed all components intentionally as a fixed-dose combination of two compounds — tauroursodeoxycholic acid and so…[Read more]

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    Mam Sadek became a registered member 8 months, 1 week ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 8 months, 1 week ago

      Hello Mam Sadek,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]

    • Profile picture of Amanda
      Amanda replied 7 months, 3 weeks ago

      Hello Mam Sadek,
      Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

      We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]

    • Profile picture of Mam Sadek
      Mam Sadek replied 7 months, 3 weeks ago

      Dagmar & Amanda
      Thank you for your warm welcome

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