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Marcy

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@marcy

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    Marcy posted a new activity comment 11 months, 3 weeks ago

    How long between your first and second emg when it showed changes? I just had my second 2 days ago by a top neurologist in Toronto and he said all the examinations were normal. I’m having a hard time not worrying still. I’ve only been have fasciculations for less than 2 months so I’m worried I went to early. He said you can go to early and if…[Read more]

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      Georgi replied 11 months, 3 weeks ago

      Hi Marcy, I was diagnosed by one neurologist on 15 March 2021 in Bulgaria. He works on private practice and he was the one who made my first completely clean EMG on 30 Dec 2021. So 2.5 months later he saw significant changes esp. in my calves. This doctor is a neurologist who makes a lot of EMGs by himself and he also worked in Germany. He told me…[Read more]

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    Marcy posted a new activity comment 12 months ago

    Did you get diagnosed thru EMG testing or neurologist?

    I have been having all over muscle twitching for 2 months. My emg and nerve testing were normal and neurologist says no als. I’m afraid I went to early for testing.

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      Georgi replied 11 months, 3 weeks ago

      In my case I had all the blood tests and 2xMRIs to rule out other conditions. The neurologist was personally doing my two EMGs and he noticed the progress. My first EMG was done on 30 Dec 2020 (5 days after my twitching on both caves started). This EMG was completely clean. The second one with the same doctor showed fasciculations, fibrilations,…[Read more]

      • Profile picture of Marcy
        Marcy replied 11 months, 3 weeks ago

        How long between your first and second emg when it showed changes? I just had my second 2 days ago by a top neurologist in Toronto and he said all the examinations were normal. I’m having a hard time not worrying still. I’ve only been have fasciculations for less than 2 months so I’m worried I went to early. He said you can go to early and if…[Read more]

        • Profile picture of Georgi
          Georgi replied 11 months, 3 weeks ago

          Hi Marcy, I was diagnosed by one neurologist on 15 March 2021 in Bulgaria. He works on private practice and he was the one who made my first completely clean EMG on 30 Dec 2021. So 2.5 months later he saw significant changes esp. in my calves. This doctor is a neurologist who makes a lot of EMGs by himself and he also worked in Germany. He told me…[Read more]

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    Marcy became a registered member 12 months ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 12 months ago

      Hello Marcy,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]

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