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I was diagnosed with ALS in May of this year and started Riluzole a few weeks later. After about 6 weeks I stopped taking it to find out if the medication was the cause of my extreme fatigue. I had no energy at all, spent most of the day on the couch.
I felt like a different person after I stopped the Riluzole, being my old, active self again.…[Read more]
I started taking Riluzole 4 weeks ago and I have not experienced any side effects.
Good luk in your journey!
Thank you for sharing! I am in somewhat of the same situation although not in the coping phase yet. I was diagnosed 1 week ago And I am still thinking: This can’t be true!
We have been married for 42 years, I retired 5 months ago and now this! We also have grandkids so I know how you feel.
I just hope and pray that a treatment will b…[Read more]
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