@maria
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Maria Berger replied to the topic Rilozole experience? in the forum A Forum for ALS Caregivers 2 years, 2 months ago
I also experienced extreme fatigue when taking Riluzole. I stopped taking it after about 8 weeks and inmediately felt better. I won’t tame it again.
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Amanda and
Maria Berger are now friends 2 years, 2 months ago
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Maria Berger replied to the topic Rilozole experience? in the forum A Forum for ALS Caregivers 2 years, 4 months ago
I was diagnosed with ALS in May of this year and started Riluzole a few weeks later. After about 6 weeks I stopped taking it to find out if the medication was the cause of my extreme fatigue. I had no energy at all, spent most of the day on the couch.
I felt like a different person after I stopped the Riluzole, being my old, active self again.…[Read more]
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Maria Berger and
Marlon + Ness are now friends 2 years, 5 months ago
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Maria Berger replied to the topic Information or results on RILUZOLE in the forum Research Topics 2 years, 5 months ago
Hi Rick,
I started taking Riluzole 4 weeks ago and I have not experienced any side effects.
Good luk in your journey!
Maria
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Maria Berger posted a new activity comment 2 years, 5 months ago
Hi, thank you for accepting me. I am 67 years old and was diagnosed with ALS 3 weeks ago. My symptoms, muscle atrophy and weakness, started in my left hand and arm. I was started on Riluzole but declined Radicava for now.
I am very interested in alternative treatments and nutrition to slow down or hopefully stop the progress of this disease. Is…[Read more] -
Maria Berger and
Diana Belland are now friends 2 years, 5 months ago-
Hi, thank you for accepting me. I am 67 years old and was diagnosed with ALS 3 weeks ago. My symptoms, muscle atrophy and weakness, started in my left hand and arm. I was started on Riluzole but declined Radicava for now.
I am very interested in alternative treatments and nutrition to slow down or hopefully stop the progress of this disease. Is…[Read more]
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Maria Berger replied to the topic ALS Awareness Month Spotlight: Denise Hagen in the forum ALS Awareness Month 2 years, 6 months ago
Hi Denise,
Thank you for sharing! I am in somewhat of the same situation although not in the coping phase yet. I was diagnosed 1 week ago And I am still thinking: This can’t be true!
We have been married for 42 years, I retired 5 months ago and now this! We also have grandkids so I know how you feel.I just hope and pray that a treatment will b…[Read more]
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Maria Berger became a registered member 2 years, 6 months ago
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Hello Maria,
Welcome to the forum! I am one of the forum moderators, as well as a person who is also living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. If you have any questions, concerns, or even…[Read more]
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Hello Maria, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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