[Maria Berger]

I also experienced extreme fatigue when taking Riluzole. I stopped taking it after about 8 weeks and inmediately felt better. I won’t tame it again.

 

[Maria Berger]

I was diagnosed with ALS in May of this year and started Riluzole a few weeks later. After about 6 weeks I stopped taking it to find out if the medication was the cause of my extreme fatigue. I had no energy at all, spent most of the day on the couch.

I  felt like a different person after I stopped the Riluzole, being my old, active self again.  No more Riluzole for me.

Maria

[Maria Berger]

Hi Rick,

I started taking Riluzole 4 weeks ago and I have not experienced any side effects.

Good luk in your journey!

Maria

[Maria Berger]

Hi Denise,

Thank you for sharing! I am in somewhat of the same situation although not in the coping phase yet. I was diagnosed 1 week ago And I am still thinking: This can’t be true!
We have been married for 42 years, I retired 5 months ago and now this! We also have grandkids so I know how you feel.

I just hope and pray that a treatment will be found to at least stop the progress.

my Neurologist prescribed me Riluzole. Is your husband taking this medication also?

Thanks again for sharing!

maria