ALS News Today Forums | Mary | Activity https://alsnewstoday.com/forums/members/mary/activity/ Activity feed for Mary. Sat, 11 Apr 2026 05:26:05 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 5e69722ebf7fe98470f1281a3548366d Mary replied to the discussion I feel my Dr. is hiding the truth in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/i-feel-my-dr-is-hiding-the-truth/#post-17153 Sat, 12 Dec 2020 11:08:48 -0600 Reply to I feel my Dr. is hiding the truth

My story could be yours Lisa I am 2 years with symtoms first 2 emgs showed denervation in fdi muscle in hand then chronic neurogenic changes reduced recruitment in the one muscle its been hell I have seen 4 neurologist all saying that I have anxiety no wonder no confirmed diagnosis have wasting in right hand like yours constant aches and pains… Read more

]]> 3b16f20e86a761f12ceefab1d203abcf Mary replied to the discussion Was your initial diagnosis correct? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/was-your-initial-diagnosis-correct-2/#post-15759 Sun, 05 Jul 2020 11:57:48 -0500 Reply to Was your initial diagnosis correct?

Hi all, by the way I really feel for you mikael as I am going on 18 months nó diagnóis it’s like a living nitemare not knowing what is happening its madness in this day and age u should have to go through all this, I have muscle wastage on right hand and bad pain have been prescribed pregabalin for pain heavy feeling in my legs have had 3 emg… Read more

]]> 9ed02e03c06e85a42778c2b2db412a1f Mary replied to the discussion Diagnosis and ALS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/diagnosis-and-als/#post-13193 Tue, 17 Sep 2019 09:16:43 -0500 Reply to Diagnosis and ALS

Yes this i am not sure the first neuro didn’t seem to experienced and she referred the 2nd one when I showed him my hand he said well u don’t have weakness it’s like he was supporting her his report went on about my emotional state more I felt my reflexes etc were all normal he has sent report to professor hence not giving me much time as… Read more

]]> 125c9c78f3e8c9ba23cd02c6d696223a Mary replied to the discussion Diagnosis and ALS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/diagnosis-and-als/#post-13175 Sun, 15 Sep 2019 10:29:18 -0500 Reply to Diagnosis and ALS

Hi, I just wanted to add to my trying find a diagnosis story! Here I am nearly a year with symtoms wasted muscle on hand now looks on wrist can’t write without pain legs and feet that fill like anti freeze has been injected into them I have now see 3 neurologists and had 2 emgs been to my doctor numerous times given anti anxiety medication… Read more

]]> 8f259dac788e2155c98f890a25f89fa0 Mary replied to the discussion What kind of information would you like to know? in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/what-kind-of-information-would-you-like-to-know/#post-12575 Wed, 03 Jul 2019 10:27:19 -0500 Reply to What kind of information would you like to know?

Hi Amanda thanks for asking well clinical exam was fine I had my hand looked at the neurologist doesn’t feel it is mnd as I have had 2 emg which show abnormality in just the 1 muscle he said it would b NY now its nearly 8 months more widespread he think I damaged muscle but no answer what to do plus he saw the muscle waste I am abit in limbo do… Read more

]]> d2c118dfea3ef9ab3c873f0505e52526 Mary started the discussion Appt with neuro in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/appt-with-neuro/ Mon, 27 May 2019 11:31:41 -0500 Appt with neuro

Hi all I has my appt with professor orla hardiman on Thursday she gave me a thorough clinical exam unfortunately I was abit overawed and didn’t ask her enough questions I told her about atrophy in hand numbness in leg and pain in other hand forgot to mention cramps anyway she doesn’t think I have Als but no real answer to my medical problems… Read more

]]> 0ebf687f0d0aad19add6d8e8555ba2a1 Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1553/#acomment-1573 Mon, 20 May 2019 19:35:31 -0500 I would have liked to have shared article but can’t work out how to do it anyway I do feel there are a large amount of people getting als who do sports I suppose I am thinking what did I do to deserve this

In reply to - Mary posted an update Hello everyone while doing alot of research on ALS one thing I have noticed alot of people who have this disease seem to have been v healthy before and exercised alot, my question is do […] ]]> 46003e86b442836079a5b06ff1fb2f44 Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1553/#acomment-1568 Mon, 20 May 2019 17:38:31 -0500 The article I read I can’t seem to share only works on my contacts on phone will b interested to see your link dagmar

In reply to - Mary posted an update Hello everyone while doing alot of research on ALS one thing I have noticed alot of people who have this disease seem to have been v healthy before and exercised alot, my question is do […] ]]> cb4a6f8b9ac6ad5274189b342b221cb2 Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1553/#acomment-1557 Sun, 19 May 2019 05:08:25 -0500 Hi dagmar, I read a v interesting article as well ré how many footballers had come done with als they were doing about too much glutamate in the brain which gets heightened during exercise and can’t b processed and destroys the motor neurons I may not have that to exact wording but I would need to send on article I just v found mist things I… Read more

In reply to - Mary posted an update Hello everyone while doing alot of research on ALS one thing I have noticed alot of people who have this disease seem to have been v healthy before and exercised alot, my question is do […] ]]> 4b7a03d854971c44d57ad0b19f33194c Mary posted an update: Hello everyone while doing alot of research on ALS one […] https://alsnewstoday.com/forums/activity/p/1553/ Sat, 18 May 2019 10:38:36 -0500 Hello everyone while doing alot of research on ALS one thing I have noticed alot of people who have this disease seem to have been v healthy before and exercised alot, my question is do you think hard exercise is a factor in getting this condition, I know I had started running more than I had ever done just wondered if anyone else was… Read more

]]> 6 66e3930e53dd5630897d879ce39de3b3 Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1454/#acomment-1532 Thu, 16 May 2019 17:35:44 -0500 Thankyou vert insightful I just thought u were diagnosed in 2010 wow 9 years that’s amazing gives me hope dagmar

In reply to - Mary became a registered member ]]> 7c9b0d0ed7ce0db78282092344a85d1a Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1454/#acomment-1529 Thu, 16 May 2019 17:09:04 -0500 Thanks dagmar I am not that good with computer tech I am having a bad day see neurologist on Thurs nó one seems to no what to say anymore

In reply to - Mary became a registered member ]]> ab86810e064a0de34c8d76fd91592a92 Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1454/#acomment-1499 Wed, 15 May 2019 05:34:01 -0500 Thanks Amanda I wasn’t able to reply to your last conversation to me, I am terrified to b honest having accpunture to try and relax but v difficult worried about the future and impact on my lovely daughter thankyou for your message it came at a appropriate time, mary

In reply to - Mary became a registered member ]]> 717d435680be54a4fe0f9ca98d7fc2ac Mary replied to the discussion Alternative treatment in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/alternative-treatment/#post-11964 Mon, 13 May 2019 18:53:18 -0500 Reply to Alternative treatment

Thankyou dagmar, that is so funny reminds me of me with the coconut can’t bear the taste really 😕I am glad to have found this forum thankyou

]]> 8e023df4efb4c84131e15ced2ffc8662 Mary replied to the discussion Alternative treatment in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/alternative-treatment/#post-11955 Mon, 13 May 2019 14:55:42 -0500 Reply to Alternative treatment

Thankyou for the good advice, the neurologist I see end of month is one of the best she is tied in with als research etc it all seems so daunting I am taking cod liver oil and vit C and b at the moment, I read about someone taking copious amounts of coconut oil and bought same made me heave better as massage oil! Mary

]]> 5517cc1fb94276fb097074ec633437c7 Mary started the discussion Alternative treatment in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/alternative-treatment/ Mon, 13 May 2019 14:04:53 -0500 Alternative treatment

Hi I have seen advertised a herbal concoction for reversal of als company is called herbal something can’t remember now! Also vitamins what r all your thoughts, mary

]]> 43c2ea930dc6dc4accf6b077e3247681 Mary replied to the discussion What kind of information would you like to know? in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/what-kind-of-information-would-you-like-to-know/#post-11949 Sun, 12 May 2019 15:51:48 -0500 Reply to What kind of information would you like to know?

Thanks Jean Pierre for your input hopefully if I am diagnosed it is v slow😔

]]> db1d9e34904b24f180838feea3da4193 Mary replied to the discussion What kind of information would you like to know? in the forum Using Our Forums https://alsnewstoday.com/forums/forums/topic/what-kind-of-information-would-you-like-to-know/#post-11947 Sun, 12 May 2019 09:07:09 -0500 Reply to What kind of information would you like to know?

Hi I just joined i haven’t had a definite diagnóis yet appt with 2nd neurologist end of month hoping to no exactly what is going on I am finding it hard to cope all I read on the Internet are horror stories with this illness it scares me I am on my own with a 11 year old daughter how does everyone manage?

]]> 40dc2556f031def1799bfbd7f6ce8a85 Mary replied to the discussion Diagnosis and ALS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/diagnosis-and-als/#post-11938 Sat, 11 May 2019 09:12:09 -0500 Reply to Diagnosis and ALS

Thanks dagmar, I am hoping I will get an answer to my symptoms when I go to the neurologist end of month then I can try and get my head around it all I am not coping with the possibility at the moment 😔

]]> b66453541689eb2ecb0655e8929922b9 Mary replied to the discussion Diagnosis and ALS in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/diagnosis-and-als/#post-11933 Fri, 10 May 2019 20:51:28 -0500 Reply to Diagnosis and ALS

Hi everyone, I just joined this site today,  I am at the tests stage although I no in my heart I have ALS it has started in my right hand where I have muscle waste and finding it v hard to write I have been to a neurologist who didn’t think I had ALS had a emg which showed an abnormality in muscle in hand did a spine mri nothing showing so am… Read more

]]> d9ef65c18eafaceec556db8070850433 Mary posted a new activity comment https://alsnewstoday.com/forums/activity/p/1442/#acomment-1460 Fri, 10 May 2019 20:26:55 -0500 Thankyou dagmar hoping i can contribute

In reply to - Irma Leticia became a registered member ]]> 741ab2e00854d5c8c09da5fcae07c5b0 Mary became a registered member https://alsnewstoday.com/forums/activity/p/1454/ Fri, 10 May 2019 16:28:21 -0500 7