@mcleods
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Sandra mcleod replied to the topic Member Check In (pALS, caregivers, and other community members) in the forum Living With ALS 3 weeks, 3 days ago
Hi…I’m in nova scotia canada…the east coast so I follow the tropical storms too….my daughter got married in July so we had a great time with that in our backyard…I notice I am more short of breathe lately but other than that I’m taking it one day at a time…I really enjoy reading all the updates and forums…thank you
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Sandra mcleod posted a new activity comment 4 months, 1 week ago
Hi…just wondering if the iv medication helps with slowing the progression of ALS
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Sandra mcleod posted a new activity comment 4 months, 2 weeks ago
Thank you….I feel like I’m in denial still…I’m starting Radicava next week….I’m on Riluzole as well….I look forward to everyone’s comments and help me understand this disease…again thank you
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Sandra mcleod became a registered member 4 months, 2 weeks ago
Hello Sandra,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Thank you….I feel like I’m in denial still…I’m starting Radicava next week….I’m on Riluzole as well….I look forward to everyone’s comments and help me understand this disease…again thank you
Hello Sandra, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I l…[Read more]
Hi…just wondering if the iv medication helps with slowing the progression of ALS