@mcoz
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Michael Cosgray replied to the topic Pre-fALS Clinic Visit in the forum Diagnosis Information and General Questions 7 months, 3 weeks ago
Amanda,
I have not been able to enroll in any pfals trials to date, thanks to my asymptomatic condition. It’s all good. I remain hopeful that a trial will come along before my battle commences that gives me more time to enjoy a high quality lifestyle. C9orf72 gene mutation research is just starting to get 🔥.
I haven not made an appointment with…[Read more]
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Michael Cosgray replied to the topic Genetics, How Does this Knowledge Change Things for You? in the forum Research Topics 8 months ago
I considered genetic testing for about three years before finally deciding to move forward. ALS isn’t a stranger in my family. The 50/50 coin flip weighed on me more and more the older I got. I found the counseling session refreshing. There is no more mystery. C9orf72 is my mutation. I have plenty to do!
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Michael Cosgray became a registered member 8 months ago
Hello Michael,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Hi Michael,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]