Mark Goodman replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months, 3 weeks ago
I started Relyvrio three weeks ago. Aside from the bitter taste I let it set for 30 min or more then drink it down. I’m also taking Riluzole and Radacava ora which my doctor wants me taking all three meds. I was diagnosed March 2022 in which I was loosing upper body strength. When I first started taking the Riluzole I felt like I was getting w…[Read more]
Mark Goodman became a registered member 8 months, 1 week ago
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]