Albert Uster replied to the topic Favorite methods for holding head up in the forum Living With ALS 3 months, 1 week ago
I’ve tried several options but my two favorites are:
1. Velpeau Neck Brace -Foam Cervical Collar – Soft Neck Support Relieves Pain & Pressure in Spine – Wraps Aligns Stabilizes Vertebrae – Can Be Used During Sleep (Enhanced, Blue, Medium, 3″) https://a.co/d/azEMEzU
2. Head up collar: htt…[Read more]
Albert Uster posted an update 4 months, 4 weeks ago
I’ve found that taking Relyvrio on ice helps the drinkability of the medicine. Much easier than before! 😊
Albert Uster replied to the topic Relyvrio in the forum Diagnosis Information and General Questions 4 months, 4 weeks ago
I started relyvrio about a month ago. Good results so far! I had been on SPB and Tudca for 1.5 years in pill form and figured this would be more effective and easier to drink.
While I find it slightly more effective; the drink vs pills is a toss up. Bitterness is not bad and can be diluted but the pills seemed easier, I find.
Albert Uster became a registered member 4 months, 4 weeks ago
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
Welcome to the forum! I am one of the forum moderators as well as a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by…[Read more]