Cheryl Teribury

Hi Lou,

Where can I get one of those?  The one I ‘m using is attached to my head rest.  I am so restricted.

Thanks,

Cheryl Teribury

In early 2017 I was experiencing weakness in my right hand.  After testing, hand dr said it was carpal tunnel.  I had the surgery, but nothing changed.  I was then referred to a Neurologist.  Several months later I saw the Neurologist.  He examined me and said he suspected ALS.  I had no idea what those three letters meant.  He gave me a brief…[Read more]

I get my teeth cleaned every six months.

I cannot endure another mammogram.  Not just because it’s painful, but also because I cannot stand that long and I cannot hold my head up.  I’m going to inquire about an ultrasound mammogram.  I believe it is an acceptable alternative.

I see my primary care provider for any suspicious skin blemishes.  If…[Read more]

I’ve been thinking about this alot and just couldn’t come up with a “label” that works for me.  I really do feel that Katie got it right.  Striver….That’s me.  (Katie, I hope you don’t mind if I copy.)  I’m relieved to have this settled.

I’d never heard of this insurance until 10-15 years ago.  I didn’t buy it, but I sure wish I had.  I was diagnosed with ALS almost five years ago.  I ‘m getting close to needing more one on one care and a place to get it.  Hindsight …

I participate in a Zoom ALS Support Group Meeting for PALS three times a month.  Living with ALS can be very lonely.  I find comfort in the friendships that I have developed out of these meetings.  The knowledge that is gained from sharing our experiences is very helpful.

I agree with Brian.  He covered it all.

Thank you, Bruce.  That is a very informative video.  At some point every ALS patient should watch it.  The families, too.

Regards,

Cheryl

I’ve been taking IV Radicava for four years, almost since my diagnosis.  My progression has been relatively slow.  I credit Radicava for that.  As I understand it, Radicava will not make your condition improve.  It will slow the progression, hence, allowing you to live a little  longer.

BTW….I started the new oral formula earlier this mont…[Read more]

Wow!  The pictures are gorgeous!  I am so sorry for your loss.

Hi Shannon,

I am a PAL.  Diagnosed 12/14/17.  I consider myself blessed because I have had slow progression compared to some others.  I know every case is different.  From what I’ve read, the  majority of PALS do  pass away peacefully.  As a PAL, that’s a comfort to me.

My grown son is my part-time caregiver.  I’ve noticed over the years of him…[Read more]

Hi Amanda,

Have you started these virtual meetings?  I would like to participate.

Cheryl