Maribel Lopez-Cepero
Forum Replies Created
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Hi. My husband was diagnosed in Feb 2021. He is a retired veteran, 27 years in service. He did not want the tracheotomy because he wouldn’t be able to communicate with us. Then, he has some respiratory complications, and we had to decide for the tracheotomy or let him go. That was two years ago.
He is in ventilator and oxygen 24/7.
He lost all his mobilities. After the surgery he has been pretty stable, no hospitalizations at all. He uses an Eye tracker Tobbi DynaVox to communicate with us.
His lungs are always clear. We use daily different devices like, cough assist, suction machine and nebulizer machine for his 3 types of therapies. Thanks God he still smiling, always busy doing a lot of things in his computer, he does all the shopping for the house through amazon, he tells us all his needs and also taking college classes for continue education. My kids and I are his caregivers, and we all are well trained with everything related with the ventilator, tracheotomy care, etc. I thank God because he still alive and we a good sense of humor.
Prayers!
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My husband uses the cough assist, suction machine and nebulizer machine for levalbuterol, saline and Ipratropium, we use theses daily and is keeping my husband out of the hospital and clear lungs, thanks God.
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Hi Amanda. Thanks for sharing. God Bless you!
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Vernon, prayers on your way! We are here to support you and your wife.
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Good Morning,
My husband has been using the Tobii Dynavox 16 for the past 7 months. It has been amazing. The training was not the best one, but he watched a lot of videos in YouTube, google information and thanks God he became a PRO. Unfortunately, he has a tracheotomy done and this equipment is helping him, us and the medical home care team a lot. He does everything with it, banking, emails, WhatsApp, News, Netflix, etc. He is very independent and somehow happy.
God Bless you all,
Maribel