NJGuy

Thanks Mark & Carol!

I have ordered Theracurmin, will soon receive that and will start. I am seeing actually good effects of just turmeric + pepper in warm water – three times a day. I am sure Theracurmin will be even better.

For any acid reflux / digestion issues, I am taking all natural Trifala churan (powder) – one tea spoon after dinner,…[Read more]

I also quit Riluzole after about 5 wks. I would actually make me feel tired, low on energy, more muscle weakness than before, feel dizzy, loss of appetite, indigestion, etc. About 1 wk now without Riluzole, and I feel good strength, also can do exercise better.

I am also taking supplements like vitamins B12, E, CoQ10, TUDCA, also natural Turmeric…[Read more]

For diagnosis of ALS – neuros follow Gold Coast criteria which is considered most apt at this time –

The Gold Coast criteria for diagnosis of ALS require (1) progressive motor impairment documented by history or repeated clinical assessment, preceded by normal motor function; (2) presence of UMN and LMN signs in at least 1 body region (with UMN…[Read more]

This is the clinical trial NCT03268603 – Mesenchymal stromal cells (MSCs) for ALS

There are three recruiting centers  Jacksonville, FL; Scottsdale, AZ, Rochester, Minnesota. All three centers will recruit patients as per the wait list, some initial visits needed to the center where recruited first and then actual stem cell treatment to be…[Read more]

to moderator:

Not misinformation:) Trying to find the views from this forum which can help me and possibly others!

If you know how difficult is the time for us (me and my family and of course for all PALS) and how desperately we are looking for cure or anything that will bring even smallest improvement to the symptoms!

And we also look for…[Read more]

Thank you so much for your reply, Jean!

I had found one more – Global Stem Cells in Thailand, they have many videos of the patients, not sure if those are real or actual patients.  Also have found reviews which are pretty conflicting.. so it is hard to be convinced..

Thanks again!

Special Note from the Forums Moderator:

Stem…[Read more]

Hi

I was diagnosed with Progressive Muscle Atrophy (PMA) in Jan2021 which kind of falls under MND/ALS, with slow progression. And while looking for possible stem cell treatment online, I found this:

https://anova-irm.com/en/treatments-disease-stem-cells/neurodegenerative-diseases/amyotropic-lateral-sclerosis-als

Anova-IRM in Offenbach,…[Read more]

Can you please give details of clinic where you received the stem cell therapy?

Thank you!

Hi All – the chosen ones :))  particularly when being 1 in 100,000!!

Diagnosed with PMA in Jan2021, weakness in my legs started in summer 7/2020 with stiffness in calf muscles on both legs, could not walk more than a mile. Slow progression, first had bilateral foot drop, but used the AFO to walk with balance. But the weakness progressed and now…[Read more]