NJGuy

Hi Louis

Sorry for that question, I just looked up the trial info, and it does say 15g x 2 daily dose of L-serine

Related questions: How long have you been taking? and do you see any improvements?

Thank you so much!

Hi Louis

Thanks you for your post about L-serine.

I would like to start with that. Question – are you sure about the max dose of 15000mg? or is it 1500mg? Does that come in a tablet form? or just powder?

Thanks

Yes I totally agree with Richard 🙁

And there seems to be no action plan or initiative, and the trials take their own pace.

AND pALS are suffering! And God only knows when there will be a real cure!

What is the way out????

Hi Jim

Actually there is a clinical trial (recruiting now) which I mentioned earlier. So my doctor says I should go for that. But I am thinking to buy on my own, and for my doctor to prescribe this drug, I need to wait a few weeks due to holidays. One of the Japan pharmacy may not need prescription –> https://bio-japan.net/ketas-ibudilast. The…[Read more]

Hi

I think I would better order Ibudilast from Japan rather than to be on trial, since on trial there will be 50/50 chances to be either on drug or placebo.

@Andrew, Thank you so much for your inputs!

Wishing all the best to you all!

Hi Andrew,

Thank you so much for sharing the information about Ibudilast, this is exactly the same idea that I mentioned above. Here is a link which describes the trial related to this drug

MN-166 (Ibudilast)

This drug works to modulate/control the immune system for either genetic / sporadic pALS.  It plays important role…[Read more]

Nicotinamide adenine dinucleotides, NAD and NADP (NAD+), are indispensable cofactors involved in several redox reactions in all forms of cellular life. NAD+ is <b>an electron carrier which will pick up electrons during the</b> course of cellular respiration. Very important for the cell functions.

Hi Duane & Susan

sorry to reply to this so late!

I had always been to my primary just for annual check ups, and last couple of years my PCP saw the cholesterol on border line and he told me to be careful, and so I had stopped or reduced on fatty foods – 1% milk, avoiding cheese/pizza and fried food etc. And in almost 1 year of trying to lower my…[Read more]

I started with Riluzole 50mg 2/day but after taking for about 4wks, it gave me lot of weakness and lost appetite, so I talk to my neurologist, he suggested to stop for sometime. After stopping I really felt much better. I am thinking of taking 1/day.