Patricia replied to the topic Do you experience muscle twitching? in the forum Living With ALS 2 years, 11 months ago
Hi Dogmar. Sorry that I am probably writing in the wrong space.
I don’t want to receive any more messages about muscle twitching. I would like to visit some other topic like learning about nutrition for those people who have difficulties swallowing.
Patricia replied to the topic Travel Tips & Woes in the forum Living With ALS 3 years, 3 months ago
All information and useful tips are great, but we all need to remember what is the stage of the desease. Accessibility takes a different meaning also depending on the desease a person has. Keep in mind that ALS is a rare disease and our needs are extreme compared to people that are wheel chair bound but keep a good strength on the rest of the…[Read more]
Patricia replied to the topic Do you experience muscle twitching? in the forum Living With ALS 3 years, 7 months ago
I have another perspective. Given the cascade of changes and the shock after the diagnose, twitching was the least of my worries. I kind of ignore them, they come and go. I find that the less you dwell on those kind of minor symptoms the better.
Patricia posted an update 4 years, 1 month ago
@dagmar-munn Hi Dagmar, maybe this is a crazy idea, but how about sharing practical solutions to every day simple or complicated problems. On every step of als progression we all encounter challenges that we sometimes solve with easy solutions. For example I still can floss my teeth but it’s getting increasable difficult. I found this small…[Read more]
Patricia became a registered member 4 years, 1 month ago
Hello Patricia, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]
Good evening Patricia and welcome to the ALS forum. I am Amanda, one of the co-moderators of the ALS forum. Have a look at the forum and discussions. You are welcomed post comments, ask questions and provide feedback. We are here to provide support and information. Please let us know if we can do anything to be helpful.
These are physical coping mechanisms – a great way to share what works for you and maybe others.
Check out the discussion on “Practical Solutions to Everyday Problems” over in the Living with ALS forum section.
Add your own tips and suggestions – – we need to learn from each other. Thanks!