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Patricia Manhardt

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@pattym

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    Patricia Manhardt replied to the topic A cure and hope for ALS (also wanting to know about treating excess saliva) in the forum A​ ​Forum​ ​for​ ​ALS ​Caregivers​ 8 months, 1 week ago

    There is no known cure that I’m aware of. However, there are a couple of drugs that need to be approved by the FDA which have shown reversal in some. Not full reversal but reversal of symptoms. For instance there is a woman who was completely paralyzed and after one treatment of NurOwn she could move her fingers. There are cases of people i…[Read more]

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    Patricia Manhardt posted a new activity comment 11 months ago

    Hello Dagmar and Amanda. I actually would like to have discussions about current treatments and drugs that are looking for FDA approval. These treatments and drugs show great promise. Some have caused patients to regain function. I am very surprised that when people have asked if there are upcoming treatments these were not mentioned. Perhaps…[Read more]

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    • Profile picture of Dagmar Munn
      Dagmar Munn replied 11 months ago

      Hi Patricia, there have been many discussions on all those topics here in the forum. To find them, type the drug name or treatment in the “search forums” box – – you can find it located in the upper right of this page. Dagmar

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    Patricia Manhardt became a registered member 11 months, 1 week ago

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 11 months, 1 week ago

      Hello Patricia,

      Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing…[Read more]

      • Profile picture of Patricia Manhardt
        Patricia Manhardt replied 11 months ago

        Hello Dagmar and Amanda. I actually would like to have discussions about current treatments and drugs that are looking for FDA approval. These treatments and drugs show great promise. Some have caused patients to regain function. I am very surprised that when people have asked if there are upcoming treatments these were not mentioned. Perhaps…[Read more]

        • Profile picture of Dagmar Munn
          Dagmar Munn replied 11 months ago

          Hi Patricia, there have been many discussions on all those topics here in the forum. To find them, type the drug name or treatment in the “search forums” box – – you can find it located in the upper right of this page. Dagmar

    • Profile picture of Amanda
      Amanda replied 11 months, 1 week ago

      Hello Patricia,
      Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

      We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an e…[Read more]

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