@pepperdecallier
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Pepper de Callier replied to the topic Emergency Notification Device in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 4 months ago
Thank you, Elaine. I’ll look into that. Pepper
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Pepper de Callier replied to the topic Emergency Notification Device in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 4 months ago
Thank you, Marianne. Yes, it was a bit scary, but it taught me that I shouldn’t be going anywhere alone. Best–Pepper
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Pepper de Callier started the topic Emergency Notification Device in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 5 months ago
I recently fell. I was not in my home. I could not get up and was basically immobile. My mouth was filling up with saliva and phlegm which I could not expel. Finally someone came to my rescue.
Is there a device that can summon help, when you cannot speak to emergency services and are not able to text?
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Pepper de Callier replied to the topic artificial voice/speech equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 6 months ago
Thanks so much. Pepper
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Pepper de Callier replied to the topic artificial voice/speech equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 6 months ago
Thanks so much! All of the responses have been very helpful!
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Pepper de Callier started the topic artificial voice/speech equipment in the forum Mobility Aides, Assistive Technology and Medical Equipment 1 year, 7 months ago
I am at the point where I’m not easily understood and I would like to hear from people about what equipment they are using and could share some dos and don’ts about selecting the right equipment.
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Pepper de Callier replied to the topic Muscle shortening in the forum Living With ALS 1 year, 7 months ago
Thank you, John.
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Pepper de Callier started the topic Muscle shortening in the forum Living With ALS 1 year, 7 months ago
Can anyone direct me to reliable info on muscle shortening from ALS–the process and what to expect? Thanks!
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Pepper de Callier replied to the topic Do people treat you differently because of ALS? in the forum Living With ALS 1 year, 7 months ago
Well said, Len! This is the kind of acceptance and perspective that can bring so much happiness and fulfillment to us. Thanks so much for sharing this.
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Pepper de Callier replied to the topic Do people treat you differently because of ALS? in the forum Living With ALS 1 year, 7 months ago
Call me an eternal optimist, but we need to focus more on more positive stuff. Yes, these things happen to all of us and will continue, but it’s how we react that makes our journey a fulfilled or demoralizing one. It is our choice to be the master or the slave of our condition. Face it, we are life warriors. We live with challenges every day…[Read more]
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Pepper de Callier changed their profile picture 1 year, 7 months ago
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Pepper de Callier replied to the topic Do people treat you differently because of ALS? in the forum Living With ALS 1 year, 7 months ago
Dear Kathy, I am a pALS, diagnosed about 18 months ago. My speech is getting pretty bad. I have customer care people hang up on me when I try to tell them the reason for my calling. It is an isolating feeling, indeed, but I have something I do every morning that helps me. When I open the shower door to get in, it’s become automatic that I thi…[Read more]
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Pepper de Callier posted a new activity comment 1 year, 8 months ago
Oh my! I am sorry to hear of your family’s history with ALS. Thank you, too, for your welcome to the group. I look forward to learning and participating.
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Pepper de Callier posted a new activity comment 1 year, 8 months ago
Hi Dagmar,
I am sure there will be topics I would like to discuss, but, for now, I’ll check out the archive. I may be delayed in responding because of the time difference. I am o Central European Time. Thank you for your nice welcoming comments. -
Pepper de Callier became a registered member 1 year, 8 months ago
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Hello Pepper,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hi Dagmar,
I am sure there will be topics I would like to discuss, but, for now, I’ll check out the archive. I may be delayed in responding because of the time difference. I am o Central European Time. Thank you for your nice welcoming comments. -
Hello Pepper,and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]
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Oh my! I am sorry to hear of your family’s history with ALS. Thank you, too, for your welcome to the group. I look forward to learning and participating.
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