ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Peter Powell

Home Members Peter Powell
show less show more
Profile picture of Peter Powell

@peter-pd

Hi, Has anyone heard of the products Leapto be fit and L-Serine? Just wondering if they offer anything, or just another scam type products? View
  • Activity
  • Profile
  • Friends 7
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of Peter Powell

    Peter Powell replied to the topic Any recommendations for good "mid level" technical reference on ALS neurology? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 8 months ago

    Sorry,it’s “Quanta” magazine

  • Profile picture of Peter Powell

    Peter Powell replied to the topic Any recommendations for good "mid level" technical reference on ALS neurology? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 8 months ago

    Hi Shawn ,not sure if this is what you are after, however I stumbled upon a magazine in the Flipboard app, titled biology.

    There are many articles covering much more than ALS, however I found some interesting once’s referencing ALS. Most of the articles seem to come from “ Quantum” magazine.

    These are not articles updating trials, but does provi…[Read more]

  • Profile picture of Peter Powell

    Peter Powell started the topic Infusions? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Hi, I’ve been on Imoglobin infusions for about 12 months now, every two weeks.  I asked my neurologist to stop these as the day of the infusion and the following day were extremely tiring with no noticeable change in my symptoms.  However I am now experiencing an increased weakness in my muscles. So, wondering if the infusions did help?

    so, my…[Read more]

  • Profile picture of Laurie Tomasello

    Laurie Tomasello and Profile picture of Peter PowellPeter Powell are now friends 1 year, 11 months ago

  • Profile picture of Peter Powell

    Peter Powell started the topic ALS Trial to New Drug Years Away? in the forum Research Topics 2 years ago

    I am a terminally diagnosed ALS sufferer.

    Along with the thousands like me we voraciously consume information on potential new drugs to slow or even reverse the terrible symptoms and disease.

    Our optimism is virtually always destroyed by the mantra at the end of each report –
    “A possible treatment resulting from this study is years a…[Read more]

  • Profile picture of Peter Powell

    Peter Powell replied to the topic Query regarding products I have heard about. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 2 months ago

    Thanks Dagmar, I won’t be trying it without consulting with my Doctor as I am on the Rescue ALS ( gold) trial which is apparently going well.  Just interested as it was mentioned to me by a PAL.

  • Profile picture of Peter Powell

    Peter Powell started the topic Query regarding products I have heard about. in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 2 months ago

    Hi, Has anyone heard of the products Leapto be fit and L-Serine? Just wondering if they offer anything, or just another scam type products?

  • Profile picture of Peter Powell

    Peter Powell posted an update 2 years, 3 months ago

    Hi, Has anyone heard of the products Leapto be fit and L-Serine? Just wondering if they offer anything, or just another scam type products?

  • Profile picture of Peter Powell

    Peter Powell and Profile picture of Mary Ball PowellMary Ball Powell are now friends 2 years, 3 months ago

  • Profile picture of Peter Powell

    Peter Powell posted an update 2 years, 5 months ago

    Just a very obtuse thought…reading about a sporting star caught taking performance enhancing drugs. One drug he took is to build and repair muscles. Thinking, this is what weight lifters do all the time. Is there a chance that these muscle repair/build drugs could have a role with ALS sufferers? Not expecting any positive outcomes….just a thought.

  • Profile picture of Dagmar Munn

    Dagmar Munn and Profile picture of Peter PowellPeter Powell are now friends 2 years, 6 months ago

  • Profile picture of Danielle Uskovic

    Danielle Uskovic and Profile picture of Peter PowellPeter Powell are now friends 2 years, 6 months ago

  • Profile picture of Peter Powell

    Peter Powell posted an update 2 years, 6 months ago

    A month now in the CNM-AU8 Trial, however I was a late inclusion. I believe others have been on the trial for 6 months or so. Keen to hear from others regarding their experiences, and obviously, any improvements.

  • Profile picture of Peter Powell

    Peter Powell posted a new activity comment 2 years, 7 months ago

    Hi Cindy, it’s the CNM Au8 trial that is being conducted world wide, now in Phase 2. It had promising results from Phase 1, and hoping for good results from this Phase. I have 3 months supply of daily liquid gold ( or placebo!) to take and they will undertake assessments throughout the trial to determine if it is working, or not.

    View Conversation
  • Profile picture of Amanda

    Amanda and Profile picture of Peter PowellPeter Powell are now friends 2 years, 7 months ago

  • Profile picture of Peter Powell

    Peter Powell posted an update 2 years, 7 months ago

    Hi, I haven’t been on here for a while, just thought I would let you know I started the Gold Trial yesterday, with baseline done and three months of Gold medicine ( or placebo!). Easy to take, small bottle of coloured liquid, tastes pretty much like water. I was the last person signed up ( they kept a place for me while looking at other d…[Read more]

    • Profile picture of Cindy
      Cindy replied 2 years, 7 months ago

      What is the Gold Trial?

      • Profile picture of Peter Powell
        Peter Powell replied 2 years, 7 months ago

        Hi Cindy, it’s the CNM Au8 trial that is being conducted world wide, now in Phase 2. It had promising results from Phase 1, and hoping for good results from this Phase. I have 3 months supply of daily liquid gold ( or placebo!) to take and they will undertake assessments throughout the trial to determine if it is working, or not.

  • Profile picture of Terri stephens

    Terri stephens and Profile picture of Peter PowellPeter Powell are now friends 2 years, 11 months ago

    • Profile picture of Terri stephens
      Terri stephens replied 2 years, 11 months ago

      CNM- AU8 sounds promising. I want to try

    • Profile picture of Terri stephens
      Terri stephens replied 2 years, 11 months ago

      I understand on the placebo. I’m not fond of that. I definitely want to try it

  • Profile picture of Peter Powell

    Peter Powell replied to the topic CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 11 months ago

    Hi, I am in Sydney, Australia and starting the screening process on 5 May with the trial commencing a month later.  The screening seems to be pretty extensive, but also baselines you for comparison throughout the 40 weeks.

    The articles says that it is being conducted at various sites around the world with US included of course.

  • Profile picture of Peter Powell

    Peter Powell started the topic CNM-AU8 Trial in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 years, 11 months ago

    Hi, Is anyone on, or planning to participate in the CNM-AU8 Trial?

    I have been asked to participate next month.

  • Profile picture of Peter Powell

    Peter Powell posted an update 2 years, 11 months ago

    Hi, I thought I read posts regarding Riluzole, however I can’t locate them?
    I have just started on Riluzole – 3 weeks and getting headaches that wake me up halfway through the night. Is this a normal side affect, and does it go away after a period of time?

  • Load More
Profile Photo Danielle Profile Photo Michael Rathai

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • Which ALS-related science, research, etc. topic is on your radar right now?
  • What’s going right for you this week?
  • What useful tools or gifts have you found to be most helpful for someone who has ALS?
  • Which ALS-related science, research, etc. topic is on your radar right now?
  • First Symptoms

Members

Newest | Active | Popular
  • Profile picture of Ray Chandler
    Ray Chandler
    Active 19 minutes ago
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 58 minutes ago
  • Profile picture of Len Jax
    Len Jax
    Active 14 hours, 6 minutes ago
  • Profile picture of Luke J Kelly
    Luke J Kelly
    Active 15 hours, 26 minutes ago
  • Profile picture of Dagmar Munn
    Dagmar Munn
    Active 15 hours, 57 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account