@peter
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Peter replied to the topic Is non-familial ALS a genetic disease? in the forum Diagnosis Information and General Questions 2 months, 1 week ago
I found out through genetic testing that I have a repeat gen expansion on the ATXN2 gen. This gene mutation was found to be a risk for ALS. I was able to enter a trial, BIIB105, this fall at UMC in Utrecht, Holland, which is testing an antisense drug in phase 1. Sponsor is BIOGEN and more details can be found at:…[Read more]
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Peter replied to the topic Hop on a Cure! in the forum ALS Awareness and Advocacy 9 months, 2 weeks ago
Hello, for many people affected by ALS it is not easy at the beginning to address the large audience. If someone finds the courage and strength to do so, should it be supported. In this days, it is unfortunately the case that you have to be loud in communication in order to be heard. If someone already has a large base of listeners, the volume can…[Read more]
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Peter posted a new activity comment 9 months, 2 weeks ago
Dear Amanda, thanks for welcoming me at the ALS forum. Great thanks to you all for supporting the ALS family with your work. I supported in the past the “Schweizerische ALS Stiftung” http://www.als-stiftung.ch and I have launched the social media challenge #steps4ALS to raise awareness and money for the research. Best regards from Switzerland, Peter
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Peter posted an update 9 months, 2 weeks ago
Have you heard about our social media challenge? Take a look at Instagram or facebook under the hashtag #steps4als – and join in directly!
With the Challenge we want to help the people affected by the disease to get more attention – and ideally also collect more donations. This means that the more of you that join in – the better.
How does the…[Read more]
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Peter changed their profile picture 9 months, 2 weeks ago
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Peter became a registered member 1 year, 1 month ago
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Hello Peter,
I would like to personally welcome you to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with A…[Read more]
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Dear Amanda, thanks for welcoming me at the ALS forum. Great thanks to you all for supporting the ALS family with your work. I supported in the past the “Schweizerische ALS Stiftung” http://www.als-stiftung.ch and I have launched the social media challenge #steps4ALS to raise awareness and money for the research. Best regards from Switzerland, Peter
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Hi Peter,
I looked at the website, but unfortunately I don’t know the language it is written in. Will it be translated at any point?