ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Peter

Home Members Peter
show less show more
Profile picture of Peter

@peter

Have you heard about our social media challenge? Take a look at Instagram or facebook under the hashtag #steps4als – and join in directly! With the Challenge we want to help the people affected by the disease to get more attention – and ideally also collect more donations. This means that the more of you that join in – the better. How doe […] View
  • Activity
  • Profile
  • Friends 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Profile picture of Peter

    Peter replied to the topic Is non-familial ALS a genetic disease? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 2 months, 1 week ago

    I found out through genetic testing that I have a repeat gen expansion on the ATXN2 gen. This gene mutation was found to be a risk for ALS. I was able to enter a trial, BIIB105, this fall at UMC in Utrecht, Holland, which is testing an antisense drug in phase 1. Sponsor is BIOGEN and more details can be found at:…[Read more]

  • Profile picture of Peter

    Peter replied to the topic Hop on a Cure! in the forum ALS Awareness and Advocacy 9 months, 2 weeks ago

    Hello, for many people affected by ALS it is not easy at the beginning to address the large audience. If someone finds the courage and strength to do so, should it be supported. In this days, it is unfortunately the case that you have to be loud in communication in order to be heard. If someone already has a large base of listeners, the volume can…[Read more]

    • Profile picture of Amanda
      Amanda replied 9 months, 2 weeks ago

      Hi Peter,

      I looked at the website, but unfortunately I don’t know the language it is written in. Will it be translated at any point?

  • Profile picture of Peter

    Peter posted a new activity comment 9 months, 2 weeks ago

    Dear Amanda, thanks for welcoming me at the ALS forum. Great thanks to you all for supporting the ALS family with your work. I supported in the past the “Schweizerische ALS Stiftung” http://www.als-stiftung.ch and I have launched the social media challenge #steps4ALS to raise awareness and money for the research. Best regards from Switzerland, Peter

    View Conversation
  • Profile picture of Peter

    Peter posted an update 9 months, 2 weeks ago

    Have you heard about our social media challenge? Take a look at Instagram or facebook under the hashtag #steps4als – and join in directly!

    With the Challenge we want to help the people affected by the disease to get more attention – and ideally also collect more donations. This means that the more of you that join in – the better.

    How does the…[Read more]

  • Profile picture of Peter

    Peter changed their profile picture 9 months, 2 weeks ago

  • Profile picture of Peter

    Peter became a registered member 1 year, 1 month ago

    • Profile picture of Amanda
      Amanda replied 1 year, 1 month ago

      Hello Peter,
      I would like to personally welcome you to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!

      We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with A…[Read more]

      • Profile picture of Peter
        Peter replied 9 months, 2 weeks ago

        Dear Amanda, thanks for welcoming me at the ALS forum. Great thanks to you all for supporting the ALS family with your work. I supported in the past the “Schweizerische ALS Stiftung” http://www.als-stiftung.ch and I have launched the social media challenge #steps4ALS to raise awareness and money for the research. Best regards from Switzerland, Peter

Profile Photo Katherine

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

Profile picture of Brian Stanfield

Recent Replies

  • Which ALS-related science, research, etc. topic is on your radar right now?
  • What’s going right for you this week?
  • What useful tools or gifts have you found to be most helpful for someone who has ALS?
  • Which ALS-related science, research, etc. topic is on your radar right now?
  • First Symptoms

Members

Newest | Active | Popular
  • Profile picture of Brian Stanfield
    Brian Stanfield
    Active 3 minutes ago
  • Profile picture of Ray Chandler
    Ray Chandler
    Active 30 minutes ago
  • Profile picture of Kevin Schaefer
    Kevin Schaefer
    Active 1 hour, 10 minutes ago
  • Profile picture of Len Jax
    Len Jax
    Active 14 hours, 17 minutes ago
  • Profile picture of Luke J Kelly
    Luke J Kelly
    Active 15 hours, 37 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Careers
  • Contact Us
  • Terms of Service
  • Privacy Policy
  • Disable Notifications
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account