ALS News Today Forums | Rando | Activity https://alsnewstoday.com/forums/members/rando/activity/ Activity feed for Rando. Sat, 11 Apr 2026 21:16:39 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 e12c29ce705241199416bc2adc67202b Rando replied to the discussion SPG302 EAP from Spinogenix in the forum ALS Progress https://alsnewstoday.com/forums/forums/topic/spg302-eap-from-spinogenix/#post-27109 Wed, 08 Apr 2026 17:01:00 -0500 Reply to SPG302 EAP from Spinogenix

I was able to see Dr. Jenkins and her assistant Chow on Monday, 4/6/26. It was an uplifting and encouraging visit. Both of these individuals are wonderfully compassionate and share their knowledge and support freely. I was given a full examination, then we moved into intake for the SPG302 EAP. Barring any anomalies in my blood work or ECG, I…

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]]> b3a15a89aaef8db8c21d8a5fd029eca7 Rando replied to the discussion SPG302 EAP from Spinogenix in the forum ALS Progress https://alsnewstoday.com/forums/forums/topic/spg302-eap-from-spinogenix/#post-27099 Fri, 03 Apr 2026 22:06:53 -0500 Reply to SPG302 EAP from Spinogenix

My wife and I live in rural Southern Oregon, with only a single neurologist available in our Iocal area. I was diagnosed on 9/16/25 after many months of troubling symptoms. I’m now receiving multidisciplinary care in Portland, OR at the Providence ALS Clinic. I’ve been chasing clinical trials with no success until now. I have an appointment…

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]]> bda6c6775c15dbfae772f6888e30efa5 Rando posted a new activity comment https://alsnewstoday.com/forums/activity/p/26012/#acomment-26039 Mon, 29 Sep 2025 21:57:23 -0500 Dagmar, what a wonderful introductory email. Can’t tell you how pleased I am to hear some of your personal journey. I was only diagnosed two weeks ago and it’s devastating news, to say the least. We are only just now learning of treatment options for my condition. Thanks for reaching out.

In reply to - Rando became a registered member ]]> 1fd8aaf5a05a2287eaf0ccef8cec55ac Rando became a registered member https://alsnewstoday.com/forums/activity/p/26012/ Wed, 24 Sep 2025 13:16:34 -0500 2