ALS News Today Forums | Rebecca D. | Activity https://alsnewstoday.com/forums/members/rdina/activity/ Activity feed for Rebecca D.. Thu, 09 Apr 2026 06:25:43 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 98003b9ab59de511a220faa330b0f6f3 Rebecca D. replied to the discussion Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/relyvrio/#post-23457 Fri, 27 Jan 2023 01:08:49 -0600 Reply to Relyvrio

I started Relyvrio January 4th and stopped the 9th. I have a bladder condition (interstitial cystitis) that had been under control for years until Relyvrio.  I knew taking it was a gamble, but wasn’t prepared for how quickly it triggered a debilitating flair of bladder pain.

]]> 9ab123b05b2c005170b1f882060593aa Rebecca D. replied to the discussion Relyvrio in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions https://alsnewstoday.com/forums/forums/topic/relyvrio/#post-23318 Thu, 05 Jan 2023 20:56:48 -0600 Reply to Relyvrio

After a bad experience with Tudca, I started Relyvrio yesterday with some trepidation. Tudca instantly started cramping & diarrhea, but so far I’m okay with the Relyvrio, despite not having a gallbladder. I also take Radicava & Riluzole. My liver enzymes are elevated due to Riluzole so it will be interesting to see what effect… Read more

]]> bdf8f6b7fec8c5ab9fc07f9ce02a2118 Rebecca D. replied to the discussion Have you had physical therapy sessions for your ALS? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/have-you-had-physical-therapy-sessions-for-your-als/#post-22259 Wed, 06 Jul 2022 14:56:38 -0500 Reply to Have you had physical therapy sessions for your ALS?

I’ve been in PT for about a year. What started as strength training for my upper back & core evolved to a lower body focus after I complained to my therapist about tripping all of the time last August. Two neurologists and multiple EMGs & MRIs later, I was diagnosed with ALS on May 10th. My right foot drops and my leg is extremely weak. I’m… Read more

]]> fec78d5eda78b725a4768b9079b2729c Rebecca D. replied to the discussion Learning to LIVE with ALS in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/learning-to-live-with-als/#post-22207 Thu, 23 Jun 2022 15:55:50 -0500 Reply to Learning to LIVE with ALS

Richard – thank you so much for sharing this info.  I was diagnosed May 10th and am just coming out of my diagnosis fog and trying to figure out next steps.  Your lists and resources will help tremendously.

]]> 5b01f61018b12fe9f0b7d18269fb9aad Rebecca D. became a registered member https://alsnewstoday.com/forums/activity/p/16197/ Fri, 20 May 2022 13:26:58 -0500 2