[richaz]

I take  this in a liquid form for $550 a month. Capsules cost $720 a month. It is available at  compound pharmacy.

<span class=”meddata”>Hopewell Pharmacy | 1 West Broad Street Hopewell, NJ 08525 | 609-466-1960</span>
<div class=”medinfo”><span class=”meddata”>1 West Broad Street, Hopewell NJ 08525</span></div>

[richaz]

I live alone and in May I adopted a rescue cat. She is 5 years old and has a gentle, playful adorable personality. She likes to sleep next to me at night and joins me on the couch when I watch TV. She is an indoor cat who likes to be near me all the time. It is comforting to have her as a therapy companion and it is amusing and a joy to watch her curious antics. Other then scoop out the litter box and put her food out twice a day, she is easy to take care of. I am a former dog owner and finally deciding on a cat instead has been a perfect decision for me.

[richaz]

The 6 stages of loss really hit home. After a year of weakness in my left arm thought to be from a prior rotator cuff injury, surgery in October 2020 did not bring strength back and I was sent for an EMG/NCV of my left shoulder and nerves. During the exam prior to the testing, the doctor notices weakness in my right arm and both hips. I had 2 days of difficult  testing of both arms, both legs, neck and lower back and the testing revealed severe “abnormal waveforms” as a strong indication of Motor Neuron Disease with ALS the most common. As a lifetime endurance athlete, I have raced in over 10 inline skating marathons (26.2 miles) in Napa Valley, Chicago and Houston since 2010 and have won many medals in my age group. I am now 66 and the reality of never skating again has been extremely emotional. As recently as Oct 2020 prior to the shoulder surgery, I was skating 12-15 miles 3-4 times a week and felt great. When I decided to put on my skates last week to see if I still had the ability to skate a little, my legs and ankles felt wobbly and there was no way I could head to the park to skate in this condition. I am under the care of an excellent Neuromuscular Disease doctor at Columbia/NY Presbyterian Hospital  in NYC, have been prescribed Riluzole, Tudca along with vitamin supplements. I do my best to walk each day and do light physical therapy at home so I am passing the denial stage and feeling shattered at the loss of my “normal athletic life functions and future expectations”  as I enter into my retirement stage in 2021. Rich

[richaz]

The below link to Hopewell Pharmacy in NJ fills my RX at $550 for a months supply. Two pint bottles with a measuring syringe to take twice a day. Can buy Tudca on line at Double Wood Supplements.

[richaz]

I have an RX from my neurologist for this. I also take 1500mg Tudca. Both of these are the medications in AMX 0035 although the actual medicine from Amylyx Pharm in their clinical trial is a quality control blend vs these raw supplements. The Phase 2 clinical trial showed good results in slowing progression and there is hope it will be FDA approved in early/mid 2022.

<span class=”ILfuVd”><span class=”hgKElc”><span class=”kX21rb ZYHQ7e”>Sep 23, 2021 </span>The ALS Association is applauding the recent change of heart by the U.S. Food and Drug Administration (FDA) to consider AMX0035’s <b>approval for amyotrophic lateral sclerosis</b> (ALS) without requiring results from an additional clinical trial.</span></span>