@robertperez
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Robert replied to the topic Radicava and side effects in the forum Living With ALS 2 weeks, 4 days ago
I am going to start radacava next week. I am presently on riluzole. At this point I am willing to try anything. I have been getting worst.
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Robert replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 1 month, 2 weeks ago
I did write to Rep Nigel. Yes I would go the Canada. Once I get locations. It’s sad how the FDA can turn a treatment down for ALS but will give e the thumbs up 👍 for pesticides that we eat every day in our fruits and vegetables. Maybe there’s now enough money Involved to fill their pockets. I mean I don’t enjoy thinking of things like this but it…[Read more]
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Robert posted an update 1 month, 3 weeks ago
Hi, glad to know that I’m not alone. No, don’t get me wrong. I don’t wish this ALS thing on anyone. I mean that when I have or feel like I need to talk, I can have someone to talk with. I was diagnosed In January 16, 2022 and have been on riluzole since. I today I started take tudca 500mg. I was a freak for exercise and I considered myself a…[Read more]
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Robert became a registered member 2 months ago
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Hello Robert,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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