Robert

Hello everyone. I used to get burning in front of my ankle’s. It’s gone now, however now I experience a very cold feeling on my ankles, knees and hips. Its weird doctors cannot explain. I am not taking anything for it. Is anyone going through this/

Hi Doug, I am little confused. I was directed to take Riluzole twice a day, one hour before or two hours after a meal. You take it with meal. h

How has it been working for you?

I am going to start radacava next week. I am presently on riluzole. At this point I am willing to try anything. I have been getting worst.

I did write to Rep Nigel. Yes I would go the Canada. Once I get locations. It’s sad how the FDA can turn a treatment down for ALS but will give e the thumbs up 👍 for pesticides that we eat every day in our fruits and vegetables. Maybe there’s now enough money Involved to fill their pockets. I mean I don’t enjoy thinking of things like this but it…[Read more]