ALS News Today Forums | Robert Rigsby | Activity https://alsnewstoday.com/forums/members/robertrigsby/activity/ Activity feed for Robert Rigsby. Sat, 04 Apr 2026 05:41:39 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 8234b3ead04398028a691ac20aa0ca5b Robert Rigsby replied to the discussion Rilozole experience? in the forum Caregivers and Family ​ https://alsnewstoday.com/forums/forums/topic/rilozole-experience/#post-15894 Fri, 17 Jul 2020 00:28:47 -0500 Reply to Rilozole experience?

Hey, Y’all:  7/16/20; Bulbar onset. Chewing/swallowing difficulty came early. Proactively, I had placement of g-tube 10/28/19- SOOOO glad I did as all food/nourishment/water/med is by tube now. I mention this because I crush Rilozole and tube it in a 70ml syringe of water. After reading above experiences the idea I present is crush the tablet… Read more

]]> 10a0d3c4a56bffd64493141e1dca136b Robert Rigsby replied to the discussion Do you have difficulty eating or drinking? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-have-difficulty-eating-or-drinking-2/#post-15856 Tue, 14 Jul 2020 20:07:43 -0500 Reply to Do you have difficulty eating or drinking?

Hello, Y’all:                7/14/20

I have a feeding tube and it is LITERALLY a LIFESAVER- wouldn’t be here w/out it! All nutrition/water via tube. My response to this subject is this, though: When my throat gets dry and I need to swallow a little water for relief I can get my head/chin in a certain position and while consciously… Read more

]]> a949c99b06bd83809c7673db6d546ffe Robert Rigsby became a registered member https://alsnewstoday.com/forums/activity/p/5715/ Fri, 15 May 2020 13:52:48 -0500 2