@robin
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Emma replied to the topic Ibudilast (Ketas) in the forum Research Topics 4 months, 3 weeks ago
Greetings. I am 58 yo female with onset in my limbs August 2017. My formal diagnosis was May 22, 2018. I am currently on Riluzole and Ibudilast. I have been taking Riluzole since July 2018 and recently started taking Ibudilast. On Ibudilast for 7 weeks now and feel no difference. I felt I would try it as long as I had no bad side eff…[Read more]
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Kathryn F. Kennedy and
Emma are now friends 7 months, 1 week ago
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Amanda and
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Dagmar and
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Emma replied to the topic Calling all pALS 1+ years with ALS: Let’s help our newly diagnosed members in the forum Living With ALS 9 months ago
Good Morning Dagmar. I read your column every week and as well as the other columnists for the last couple of years. I have never written until now. I am 58 yo and was formally diagnosed with ALS on May 22, 2018 although onset was August 2017. I twisted my right ankle as I ran down the stairs and since I was active, I thought it was just tha…[Read more]
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Emma became a registered member 1 year, 5 months ago
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Hello Wendy, my name is Dagmar. I’m one of the forum co-moderators and wanted to welcome you and thank you for joining our forum! We hope you will take the time to go through all the open conversations that are in progress and feel free to join in. If you have any questions or concerns or even suggestions, just let us know, and we will do our b…[Read more]
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Hi Wendy, my name is Michael Morale. I’m the Director of Multichannel Content for ALS News Today. I wanted to welcome you and thank you for joining our forum. We hope that you will take time to go through all of the open conversations that are actively in progress, and feel free to join in. We strive to bring you the information that you need to m…[Read more]
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Hi Wendy, Thanks for your recent post. It was very helpful to me. There is a lot in your story that could be my story except I am 72 years old.. I especially hung on to the advice your therapist gave you. Thank you so much for sharing
Susan
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