@sandidickover
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Sandra Isaacsoln replied to the topic What's the latest news on AMX0035? in the forum Research Topics 8 months, 2 weeks ago
My physician contacted the company administering the EAP program. This is the first paragraph of their response. ” Thank you for your patience. Amylyx are only able to support a limited number of sites for this Expanded Access Program and so we recommend referring your patients(s) to one of activated sites that are published on ClinicalTrials.gov…[Read more]
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Sandra Isaacsoln replied to the topic What do you think of this new form of Radicava? in the forum Research Topics 8 months, 2 weeks ago
It sounds great. I was diagnosed in October 2020. I decided not to pursue Radicava because of the IV dosing schedule. Does anyone know who the manufacturer will be of the new oral form, and will it be available in pharmacies like CVS?
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Sandra Isaacsoln became a registered member 10 months, 3 weeks ago
Hello Sandra,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!
We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]