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My father recently passed with ftd and als at the age of 72 with rapid progression from a slight slur to being mute within a year and with rapid mobility issues until his death 19 months after first symptoms. Diagnosis came after death as the nhs completely failed him. I now at the age of 49 have symptoms and am waiting genetic testing and I guess some tests. My concern is without a diagnosis I will not be able to claim my critical illness and life insurance to enjoy what life I have left but the nhs seems incapable of moving quickly enough! These forums are essential for wellbeing and I’m trying to keep positive