@scotty
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Scotty replied to the topic Helping someone with ALS to feel less alone in the forum A Forum for ALS Caregivers 7 months ago
Thanks so much for your responses. My BIL certainly has a lot of visitors and love surrounding him. I just know that because so much has been taken from him so quickly (he was diagnosed in April and no longer can talk and losing mobility) he feels alone in this awful experience. He’s not really into therapy at the moment because of communicating…[Read more]
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Scotty started the topic Helping someone with ALS to feel less alone in the forum A Forum for ALS Caregivers 7 months, 2 weeks ago
Hi there,
I am not the primary caregiver for S, who is my sister’s husband. My sister is his caregiver but I am very close to them and their four kids and sometimes I feel so helpless. The other day, my BIL expressed through text (he no longer can talk) how alone he feels in this experience. I don’t know how therapy would work because he can’t…[Read more]
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Scotty, you could always ask your BIL if he would be interested. I can look to see if there are Facebook groups or other social media sites where he could communicate with other pALS. He is also welcomed to join the discussions here too.
Scotty, my heart broke as I read your post. I think it is wonderful that you care so much for your family…[Read more]
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Amanda and
Scotty are now friends 7 months, 2 weeks ago
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Scotty replied to the topic Complications with Riluzole and high levels of Vit C and other supplements in the forum Living With ALS 11 months ago
Thanks so much, guys…this is so helpful!
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Scotty replied to the topic Complications with Riluzole and high levels of Vit C and other supplements in the forum Living With ALS 11 months ago
Thanks very much for your reply!
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Scotty replied to the topic SUPPLEMENTS TO SLOW ALS PROGRESSION in the forum Diagnosis Information and General Questions 11 months ago
sometimes the problem with taking so many supplements is that they can make you feel sick and tired, in high doses and with certain combinations. Anyone else experience that?
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Scotty started the topic Complications with Riluzole and high levels of Vit C and other supplements in the forum Living With ALS 11 months ago
Hi all,
I’m wondering if anyone has experienced (or a caregiver has witnessed) a terrible reaction to riluzole resulting in days and days of nausea and fatigue? My BIL was also working through a functional medicine program with loads of supplements and high doses of Vitamin C so we really thought it could be that but then the nurse at Sunnybrook…[Read more]
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Scotty became a registered member 11 months ago
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Hello Scotty,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Scotty,
Last may, ALS Awareness Month, we spotlighted several forum members. They shared their experiences and thoughts. You may want to go to the ALS News Today website and read through some of those. They might be helpful to your brother in law also.
I have to say that our members are amazing, supportive and wonderful to one another. Many…[Read more]