• Thanks so much for your responses. My BIL certainly has a lot of visitors and love surrounding him. I just know that because so much has been taken from him so quickly (he was diagnosed in April and no longer can talk and losing mobility) he feels alone in this awful experience. He’s not really into therapy at the moment because of communicating so slowly through text but I thought if he could read other people’s experience maybe it would help. Thank you so much and I will check out the blog mentioned here and forums.

    • Scotty,

      Last may, ALS Awareness Month, we spotlighted several forum members. They shared their experiences and thoughts. You may want to go to the ALS News Today website and read through some of those. They might be helpful to your brother in law also.
      I have to say that our members are amazing, supportive and wonderful to one another. Many of them spend hours and hours researching topics and websites. I haven’t seen all of the websites/chats recommended, but I’m sure you are getting great information on here. Please, please let us know your thoughts on what you find!!


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