ALS News Today Forums logo
  • Home
  • About Our Forums
  • Forums
  • Groups
  • Members
  • Activity
  • Search
  • What can we help you find today?

Susan Kinkade

Home Members Susan Kinkade
show less show more
Profile picture of Susan Kinkade

@sekinkade69

  • Activity
  • Profile
  • Friends 2
  • Groups 0
  • Forums
  • Articles
  • Personal
  • Mentions
  • Favorites
  • Friends
  • Groups
  • Profile picture of Tom Hehir

    Tom Hehir and Profile picture of Susan KinkadeSusan Kinkade are now friends 1 year, 10 months ago

  • Profile picture of Susan Kinkade

    Susan Kinkade replied to the topic Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 10 months ago

    Yes, as the day wore on my speech would get  very weak and it was hard to articulate words. I actually got exhausted trying to talk. At that time I was not drooling. For me the drooling started when my speech was totally gone. The drooling for me is less in the morning and gets more intense as the days goes on. I use a cough assist and suction…[Read more]

  • Profile picture of Susan Kinkade

    Susan Kinkade replied to the topic Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    Anne,
    My speech started like yours and stayed that way for a about 6 months. Once it started to be difficult in the mornings it progressed to non verbal in about 2 months. It was very fast.
    Any other questions please don’t hesitate to ask.
    Susan

  • Profile picture of Susan Kinkade

    Susan Kinkade replied to the topic Urgently referred to ALS clinic. Anyone here have respiratory and bulbar onset? in the forum Diagnosis​ ​Information​ ​and​ ​General​ ​Questions 1 year, 11 months ago

    I also have bulbar and respiratory onset ALS. My symptoms became noticeable in Dec 2018. My Pulmonologist and Neurologist gave a preliminary diagnosis in June 2019. I had the diagnosis confirmed by an ALS Clinic in December 2019. My primary symptoms were speech and swallowing with some shortness of breath. In December 2020 I had a peg tube…[Read more]

  • Profile picture of Susan Kinkade

    Susan Kinkade replied to the topic Speak up and let us know what topics are useful! in the forum Using our Forums 2 years ago

    How do ALS patients deal with constipation? I’ve had a feeding tube for six months and began having trouble with constipation. I do not take anything orally and make sure that  I stay hydrated using the feeding tube. Are there any suggestions out there?

  • Profile picture of Susan Kinkade

    Susan Kinkade replied to the topic Single Injection of RNA Therapy Blocks Degeneration And Prevents ALS Progression in the forum Flash Briefings 2 years, 1 month ago

    Has there any more progress in this study.

  • Profile picture of Amanda

    Amanda and Profile picture of Susan KinkadeSusan Kinkade are now friends 2 years, 1 month ago

  • Profile picture of Susan Kinkade

    Susan Kinkade became a registered member 2 years, 2 months ago

    • Profile picture of Amanda
      Amanda replied 2 years, 2 months ago

      Hello Susan, and welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive history of ALS and we know that we have a genetic mutation in the SOD1 gene. I lost m…[Read more]

    • Profile picture of Dagmar Munn
      Dagmar Munn replied 2 years, 2 months ago

      Hello Susan,

      Welcome to the forum! I am one of the forum moderators, as well as a person who is living with ALS: I was diagnosed in 2010.

      If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or…[Read more]

Profile Photo Katherine

Register

Search forums

Generic selectors
Exact matches only
Search in title
Search in content
Post Type Selectors
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages
Search in posts
Search in pages

Who’s Online

There are no users currently online

Recent Replies

  • Which ALS-related science, research, etc. topic is on your radar right now?
  • Which ALS-related science, research, etc. topic is on your radar right now?
  • Confused about progression of symptoms
  • Which ALS-related science, research, etc. topic is on your radar right now?
  • Living with a laryngectomy

Members

Newest | Active | Popular
  • Profile picture of Maryann
    Maryann
    Active 1 hour, 10 minutes ago
  • Profile picture of Len Jax
    Len Jax
    Active 7 hours, 20 minutes ago
  • Profile picture of Richard L Wheeler
    Richard L Wheeler
    Active 10 hours, 21 minutes ago
  • Profile picture of Susan
    Susan
    Active 11 hours, 51 minutes ago
  • Profile picture of Patty
    Patty
    Active 17 hours, 6 minutes ago

Forums

  • Coronavirus (COVID-19) and ALS
  • In Loving Memory
  • Living With ALS
  • ALS Awareness Month
  • Flash Briefings
  • A​ ​Forum​ ​for​ ​ALS ​Caregivers​
  • Diagnosis​ ​Information​ ​and​ ​General​ ​Questions
  • Mobility Aides, Assistive Technology and Medical Equipment
  • ALS ​and​ ​Relationships
  • Research Topics
  • ALS Awareness and Advocacy
  • ALS News
  • ALS In The Media
  • Using our Forums
  • Most popular topics
  • Topics with no replies

ALS News Today Forums

BioNews Services, LLC
3 W Garden St
Suite 700
Pensacola, FL 32502
Email: [email protected]
Phone: +1-800-936-1363
  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy

ALS News Today Forums is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

BioNews, Inc.

3 W Garden St
Suite 700
Pensacola, FL 32502
Website: bionews.com
Email: [email protected]
Phone: 1-800-936-1363

  • Email Forum Support
  • Publishing Team
  • Leadership
  • Our Culture
  • Corrections Policy
  • Terms of Service
  • Privacy Policy
  • Careers
  • Contact Us
  • Advertising Policy
Disclaimer

This site is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

Copyright © 2017-2023 All rights reserved.

©2023 KLEO Template a premium and multipurpose theme from Seventh Queen

CONTACT US

We're not around right now. But you can send us an email and we'll get back to you, asap.

Sending

Log in with your credentials

or     Create an account

Lost your password?

Forgot your details?

I remember my details

Create Account