Base

My husband Greg was diagnosed in Nov 2014 at the age of 53. His symptoms started in April of that year. He first began having some problems speaking, with slurred speech that just kept getting worse. Soon after, he had trouble swallowing food with frequent choking. He had a G tube placed Sept 2015. His breathing capacity FVC dropped steadily and he got a trache Feb 2018, now using a Trilogy ventilator 24/7. His hand and arms were the first to become weak and then his legs. He is now either bedbound or in his power chair. He was still able to walk up until the time he had his trach surgery. He was in the hospital a week for that surgery and I believe he lost the strength in his legs during that week because they did no range of motion.  He has a very positive attitude and seems to accept everything this monster ALS does to him. It’s much harder for me, his wife, to watch this happen to the man you love. You grieve and just have to adjust with every change and loss. We’ve known about ALS for over 100 years. WHY isn’t there a cure yet? Before ALS, he was very healthy. I believe it all started with a bad blow to his head while swimming in a pool a few years earlier, but who knows. We MUST find a cure.