ALS News Today Forums | Stephen Greer | Activity https://alsnewstoday.com/forums/members/stephengreer/activity/ Activity feed for Stephen Greer. Tue, 07 Apr 2026 05:56:35 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 dcfc9ab1d463d97f9fe63d09d0d8d0ce Stephen Greer posted a new activity comment https://alsnewstoday.com/forums/activity/p/8534/#acomment-9135 Sat, 05 Dec 2020 17:47:19 -0600 Robert.

I used Radicava for about 3 years beginning in Sept. 2017. All infusions after the first starter round were done at home. For long term use – you will likely need a Power Port placed in your chest (or PICC line in arm) designed for access by a Huber needle or PICC line connector and your RN/LPN/home care giver. Virtually impossible… Read more

In reply to - Robert Taylor changed their profile picture ]]> 3451ef4681d5755a4c9d96e59b470152 Stephen Greer replied to the discussion Do you experience muscle twitching? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-experience-muscle-twitching/#post-15605 Thu, 18 Jun 2020 00:17:09 -0500 Reply to Do you experience muscle twitching?

Danielle

In addition to supplements, I take both Radicava (started 9/17) and Riluzole (started 9/19).

I take many supplements based on the Duke ALS clinic study of 45 known ALS “reversals” that is published on the ALS Untangled site. I have also leveraged recent research linking microbiome health in the gut and neurological function. … Read more

]]> eb9b39925300890a6d1b9cc216674d88 Stephen Greer changed their profile picture https://alsnewstoday.com/forums/activity/p/6265/ Tue, 16 Jun 2020 21:40:53 -0500 0 a4ff06f8b00d51e175a8942aba600248 Stephen Greer changed their profile picture https://alsnewstoday.com/forums/activity/p/6264/ Tue, 16 Jun 2020 21:39:01 -0500 0 37c88a0e6a4b4c880b073ea19834b5ec Stephen Greer replied to the discussion Do you experience muscle twitching? in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/do-you-experience-muscle-twitching/#post-15594 Tue, 16 Jun 2020 20:57:43 -0500 Reply to Do you experience muscle twitching?

All,

There have been many great posts and sharing of experiences on this topic and others. I have been a person living with ALS since early 2017.

In addition to all of the supplements and stretching, I focus on a diet of 80-100 g. or more of protein a day to feed the muscles, etc.  Protein shakes are an easy way to help keep up the weight… Read more

]]> 5f27a6233460f08b2bf3a1bf0196ca0a Stephen Greer became a registered member https://alsnewstoday.com/forums/activity/p/3332/ Mon, 04 Nov 2019 16:51:43 -0600 2