Charles Sutherland & Doris Sutherland (caregiver)

My husband still goes to the shed with his brothers. He was always the one tat kept the lawn movers ready to go. His brother had not yet retired.  So, when mowing the lawn day came,  he and his two brothers just got busy. His brothers re now learning what he did, his skills, and how much he did. He is unable to do the manual labor part but his k…[Read more]

I just asked my husband this question. He said it was the speech. My husband has always been the family spokesman. Today, it’s just the opposite. It hurts my heart to see him struggle to get his words out. We have voiced banked for the future. But we know it will not be the same. But we’re thankful for technological advances.

My husband’s first symptoms were in early 2000. He developed weakness in his left leg. Doctors, at that time, thought it was his spine (spinal stenosis) that eventually resulted in three surgeries, that did not help.  He was finally diagnosed in September 2022, after ruling out of Parkinson, MS, Myasthenia Gravis, etc.  The speech problem, alon…[Read more]

My husband recently got thePermobil with the  seat elevator. It’s the bomb. He has regained some of the independence he’d lost. He’s back in the cabinets and to the mailbox to retrieve our mail. So happy he has this chair. With ALS, independence, no matter how small, is so important.

So sorry about your loss. ALS is a terrible disease. I totally agree. The devices are so very important to aid in a better quality of life. I’m the caretaker for my husband. I have learned how to operate his trilogy machine. He uses it every night. I watch him breathing. This machine gives me a kind peace, and him a better nights rest. There are o…[Read more]

My husband has been on Relyvrio since diagnosis in September 2022. There have been no side effects thus far. We’re trying to get Radicava approval from our insurance. It’s been appeal after appeal. Some of these Medicare advantage plans are horrible. His neurologist want him in this medication but insurance will not budge. But we will not give up…[Read more]

My husband has been on Relyvrio since diagnosis in September 2022. There have been no side effects thus far. We’re trying to get Radicava approval from our insurance. It’s been appeal after appeal. Some of these Medicare advantage plans are horrible. His neurologist want him in this medication but insurance will not budge. But we will not give up…[Read more]

Well, my husband didn’t want to reply. My husband first had symptoms in 1998.  The doctors diagnosed him with spinal stenosis, pinched nerve, compression  of spinal cord – cervical lamenectomy. This lead to three unnecessary surgeries. Fast forward to retirement in 2008, new location and new doctors – as weakness, balance and muscle loss pro…[Read more]

We just tell them I have an incurables disease call ALS. It causes muscle weakness. My brain and spinal cord signals are not in are not working as they should. There’s only treatment to slow the progress. And If you want to know more about ALS – just Google it. People will look at you so pitifully.