@suzzyq
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Maureen Williams replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 1 month, 2 weeks ago
I stopped taking Albrioza completely as the diarrhea was out of control. I tried one dose several weeks later but it made me feel sick and the diarrhea returned so I stopped.
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Maureen Williams replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 3 months ago
I have been taking Albrioza for about 2 months now and live in Canada. There has been no cost to me so far. It has been causing diarrhea however so Imodium is being taken to control it so far. My neurologist says to stop taking it and see what happens then try again.
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Maureen Williams replied to the topic Would you seek out Albrioza treatment? in the forum Research Topics 3 months ago
I have been taking Albrioza for about 2 months now and live in Canada. There has been no cost to me so far. It has been causing diarrhea however so Imodium is being taken to control it so far. My neurologist says to stop taking it and see what happens then try again.
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Maureen Williams replied to the topic What's the latest news on AMX0035? in the forum Research Topics 4 months, 3 weeks ago
That should read probably, not problem, and I’ll be starting to take it next Tuesday.
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Maureen Williams replied to the topic What's the latest news on AMX0035? in the forum Research Topics 4 months, 4 weeks ago
I’ll be starting Albrioza problem this week! We shall see how it goes.
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Maureen Williams posted an update 5 months ago
I will be receiving packets of Albrioza sometime this week. I was told I may not be accepted in the program as they wanted people who have had ALS for 18 months or less but I guess there are exceptions! They have told me they will cover the cost for the first month and help out as well after that. There are side effects apparently so we shall see…[Read more]
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Maureen Williams became a registered member 5 months ago
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Hello Maureen,
Welcome to the forum! I am one of the forum moderators and a person living with ALS: I was diagnosed in 2010.
If there is anything specific you would like to see discussed on the forum, feel free to post a new topic in any of our forums or jump in on an existing topic. You can also search for past topics or discussions by typing a…[Read more]
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Hello Maureen,
Welcome to the ALS forum. I’m Amanda, one of the co-moderators of the forum. ALS is a dreadful disease and we all want to understand it better, and find a cure!!We are happy you have joined our online community. You will find that the ALS forum is made up of people with different associations with ALS. My family has an extensive h…[Read more]
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