thomas-hubbard
Forum Replies Created
-
This website just leads around in circles, never provided any usable real information. It seems more designed for building membership and donations than actually helping somebody.
-
Yo, Russell! My symptoms began as cramps and twitching in left leg and it was a couple of years before I noticed I could no longer articulate so well on my guitar. I went back to the medical center and waved my arms in the air and raised my voice and finally was sent for an MRI. Still no definitive diagnosis. Now after four MRIs by a succession of four different neurologists I have a positive diagnosis that I could probably have reached on my own with a little research. My ALS is an extremely slow variant. I am 12 or 13 years into it and still able to walk a little. But what I want to say is that the advise you read above is correct: take it easy. There’s no use being upset or anxious. ALS doesn’t respond to that. As your diagnosis is new, if in fact it is ALS, I point you to the abstracts of current research in which scientists have gotten to the root causes of this disease. Cures are forthcoming. You may be at just the right time to beat it. We are all for you!