ALS News Today Forums | Tim Federwitz | Activity https://alsnewstoday.com/forums/members/tim-federwitz/activity/ Activity feed for Tim Federwitz. Sat, 04 Apr 2026 12:49:10 -0500 https://buddypress.org/?v=2.19.0 en-US 30 hourly 2 65962a3afe7235a6e2e6aa36e574c242 Tim Federwitz replied to the discussion Taking multiple ALS medications in the forum Living With ALS https://alsnewstoday.com/forums/forums/topic/taking-multiple-als-medications/#post-24484 Sat, 09 Sep 2023 17:44:38 -0500 Reply to Taking multiple ALS medications

I only take Riluzole for now. However, I have an interesting anecdote around knowing if it is doing anything!

When I started taking it, I couldn’t tell if it was doing anything for me. However, I am used to my prescriptions auto-filling for me, so I ran out after the first month. It was through some specialty pharmacy that I had never used… Read more

]]> 60db6b56bfb365b7e7827a92443bb3e5 Tim Federwitz posted a new activity comment https://alsnewstoday.com/forums/activity/p/19633/#acomment-19641 Sun, 02 Jul 2023 17:43:11 -0500 Thanks Dagmar! Happy to finally be accepted (I got denied originally… I guess I was one of the “shouldn’t have been denied, but better safe than sorry” people).

I was originally diagnosed as PLS in 2018 because they “weren’t ready to call it ALS” yet. They found nerve decay in December 2022 and changed my diagnosis to ALS. I was always… Read more

In reply to - Tim Federwitz became a registered member ]]> cf0cf4ee623f5962bfda41d428e291aa Tim Federwitz became a registered member https://alsnewstoday.com/forums/activity/p/19633/ Fri, 30 Jun 2023 17:54:53 -0500 4